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The boy who is allergic to almost EVERY food
The Evening Standard, London ^ | October 2, 2007 | unknown

Posted on 10/02/2007 3:51:14 AM PDT by 8mmMauser

            Tyler Savage: he is fed through a tube in his stomach

Tyler Savage: he is fed through a tube in his stomach

A boy of 12 suffers from so many allergies that he is able to eat only five foods.

Tyler Savage is violently ill every time he is given dishes containing dairy products or wheat, gluten, eggs, lactose and soya.

The sole foods he is allowed are chicken, carrots, grapes, potatoes and apples.

To help him survive, minerals and vitamins are pumped directly into his stomach through a tube.

Tyler started to fall ill at the age of six when even a morsel of food would leave him writhing in agony from sickness and diarrhoea.

His mother, Lynne Savage, 43, said: "We asked for help but kept being told that he was suffering from a stomach infection. As a result his weight dropped drastically.

"He ran out of energy really quickly and couldn't do the things other children were doing. He just seemed to be getting worse and worse.

"It's been a real struggle. We didn't know what to do."

Tyler - from Earls Colne in Essex - was seen by a paediatrician at Chelmsford's St John's Hospital and had his appendix removed in December 2005.

Although the operation was a success it failed to solve the problem and he was referred to Colchester General Hospital for further tests and treatment.

That shed no light on the mystery illness and in April last year Tyler was sent to Great Ormond Street Hospital in London for checks on his stomach and bowels.

The tests led to a diagnosis of eosinophilic enteropathy, a rare and condition in which the intestines produce too many white blood cells.

These act as a miniature immune system and attack food passing through the gut to the stomach.

The condition saw Tyler's weight drop to barely three stone.

"He was becoming malnourished," said Mrs Savage, a married mother-of-three and housewife.

At first, Tyler was fitted with a nose tube to help get food direct to his stomach, bypassing the rogue blood cells in his gut.

Then, this May, he had a tube inserted into his stomach allowing him to be fed for up to ten hours through the night.

"Even though this will continue for the foreseeable future, it is a godsend," said Mrs Savage.

"Last year he was only at school for about ten days, but in the first two weeks of this new term he's only missed one day.

"We've got a long way to go but at least we're now getting some answers."

In the day, Tyler, whose father, David, 60, is an engineer, can eat the five foods he is not allergic to.


TOPICS: News/Current Events
KEYWORDS: allergies; bootcampdeath; feedingtubes; georgetownu; hulkhogan; johngraziano; martinanderson; mattlauer; nickbollea; october; pinellascty; schiavo; terri; terridailies; wills2live
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It is a case where feeding tubes give this boy a chance.
1 posted on 10/02/2007 3:51:19 AM PDT by 8mmMauser
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To: Ohioan from Florida; Goodgirlinred; Miss Behave; cyn; AlwaysFree; amdgmary; angelwings49; ...
Feeding tubes...

8mm


2 posted on 10/02/2007 3:53:16 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: Salvation

Ping...


3 posted on 10/02/2007 3:55:00 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: floriduh voter

Thanks!


4 posted on 10/02/2007 3:55:45 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: 8mmMauser
"The sole foods he is allowed are chicken, carrots, grapes, potatoes and apples."

You have to wonder if they've truly tested all foods that are available. Often those allergy tests only cover our Western foods, not grains, veggies and fruits found elsewhere.

I'm personally not able to eat gluten, dairy, corn, eggs, peanuts, pecans, and most beans, but still find a vast variety of foods I CAN eat, largely by shopping at the international grocery store.

Regardless, I AM glad that a feeding tube can help this boy. Hopefully they'll find other ways to help him as well that he won't always have to be on one.

5 posted on 10/02/2007 4:06:11 AM PDT by TruthSetsUFree
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To: All
Fox News picks up the story...

..............................

A 12-year-old boy from the U.K. is allergic to so many foods that he must exist on a diet of chicken, carrots, grapes, potatoes and apples, according to a report in London's Evening Standard.

Tyler Savage, of Earls Colne in Essex, becomes violently ill every time he eats food containing dairy products or wheat, gluten, eggs, lactose and soy.

Tyler was first diagnosed with a rare condition at age 6 when even a morsel of food would cause him sickness and diarrhea. At first though, doctors were stumped, the boy's mother said.

Report: 12-Year-Old Boy Allergic to Almost Every Food

8mm

6 posted on 10/02/2007 4:07:03 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: TruthSetsUFree
I am "sensitive" to the poor boy's plight. After long periods of just feeling rundown, I was checked by the doctor who ran sensitivity blood tests. It showed my sensitivity, not what they called allergy, was to a number of foods much to the surprise of us both. Wheat gluten was one of them. Eliminating them from my diet brought great results right away, but I miss those foods on the list. (except spinach...)
7 posted on 10/02/2007 4:12:32 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: TruthSetsUFree

That list sounds like a missing digestive enzyme ~ ~ I hope you’ve seen a doctor on the corn part. I’ve noticed that numerous “corn products” also have a gluten additive as well, and sometimes for no apparant reason.


8 posted on 10/02/2007 4:15:40 AM PDT by muawiyah
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To: All
It is picked up again in the UK...

Tyler Savage, 11, has been fitted with a tube that allows him to receive controlled food and nutrients straight to his stomach, allowing him the chance to recover from many years of illness and lead a normal lifestyle.

Tyler benefits from special operation

8mm

9 posted on 10/02/2007 4:16:10 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: 8mmMauser

Thankfully he lives in England and not Florida.


10 posted on 10/02/2007 4:20:00 AM PDT by mtbopfuyn (I think the border is kind of an artificial barrier - San Antonio councilwoman Patti Radle)
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To: mtbopfuyn

They would yank it, saying it was extraordinary life support.


11 posted on 10/02/2007 4:23:05 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: TruthSetsUFree

They may not have medically tested every food, but probably the boy’s family has experimented with what brings on symptoms and what doesn’t.


12 posted on 10/02/2007 4:33:14 AM PDT by dawn53
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To: dawn53

At least his parents aren’t insisting that the government ban all the foods he’s allergic to.


13 posted on 10/02/2007 6:27:05 AM PDT by massgopguy (I owe everything to George Bailey)
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To: TruthSetsUFree

Potatoes would stand out as odd in the line up of ‘approved foods’ to me.


14 posted on 10/02/2007 6:35:08 AM PDT by kinoxi
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To: 8mmMauser

He’s being kept alive artificially. Cut the tube.

/s


15 posted on 10/02/2007 6:41:14 AM PDT by varyouga ("Rove is some mysterious God of politics & mind control" - DU 10-24-06)
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To: 8mmMauser

I missed the part about every school in Earls Colne being forbidden to allow any other child to eat normal foods...


16 posted on 10/02/2007 7:04:10 AM PDT by Publius6961 (MSM: Israelis are killed by rockets; Lebanese are killed by Israelis.)
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To: muawiyah

I have a hunch that some of them I’ll be able to reintroduce. I think the major culprit was gluten, which I’ve since found out is genetic. Having eaten it most of my life probably created enough immune system upset that I’ve reacted to the other things. At some point I’m going to try reintroducing them one at a time.


17 posted on 10/02/2007 7:34:30 AM PDT by TruthSetsUFree
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To: 8mmMauser

I’m curious what symptoms you had that cleared up when you eliminated gluten, etc.

Mine were migraines, brain fog, muscle aches, low energy, cold feet, anxiety, mood swings ... in other words, not a fun time! :)


18 posted on 10/02/2007 7:35:44 AM PDT by TruthSetsUFree
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To: TruthSetsUFree
I'd be careful with apples ~ they've been busy breeding hypoallergenic varieties ~ and all versions of the "delicious" variety seem to be tolerable. Some of the others are as bad as wheat.

Easiest thing to do is peal them.

Your T-cells should eventually calm down but "dough conditioner" can irritate them just like you'd been hit with gluten.

19 posted on 10/02/2007 10:23:09 AM PDT by muawiyah
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To: All; 8mmMauser

I can remember when children who used feeding tubes sent Terri Schiavo greeting cards.


20 posted on 10/02/2007 11:52:43 AM PDT by Sun (Duncan Hunter: pro-God/life/borders, understands Red China threat, NRA A+rating! www.gohunter08.com)
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To: muawiyah
Easiest thing to do is peal them.

I learn something new every day!

I dint know apples could be rung...

21 posted on 10/02/2007 2:36:52 PM PDT by Publius6961 (MSM: Israelis are killed by rockets; Lebanese are killed by Israelis.)
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To: TruthSetsUFree
Do you get an upset stomach and intestional problems when you eat corn?

I either have my tongue, lips, throat swell or, in the case of corn syrup solids, I have asthma attacks and end up with pneumonia.

22 posted on 10/02/2007 3:24:51 PM PDT by Freedom Dignity n Honor (There are permanent moral truths.)
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To: 8mmMauser

Ping to check back later.


23 posted on 10/02/2007 3:25:34 PM PDT by Fire_on_High (I am so proud of what we were...)
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To: Publius6961

You are on a roll! LOL


24 posted on 10/02/2007 3:29:28 PM PDT by donnab (Saving liberal brains...one moron at a time.)
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To: Freedom Dignity n Honor

My reaction to corn has been migraines.

But my mother gets tingling in her hands and swollen eyelids if she eats corn.

The swelling is not to be taken lightly, I’m sure you realize. Do you keep benadryl or something like that on hand to reduce reactions when you accidentally eat some?

Corn is in so many things these days, especially in the form of high fructose corn syrup.


25 posted on 10/02/2007 4:23:37 PM PDT by TruthSetsUFree
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To: Publius6961

Very quick.


26 posted on 10/02/2007 4:43:13 PM PDT by muawiyah
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To: 8mmMauser

What a sweet child. Feeding tubes have been given a bad rap here at FR by some posters.


27 posted on 10/02/2007 7:28:09 PM PDT by floriduh voter (TERRI Anti-Euthanasia Ping List: 8mmmauser & I'm 4 DUNCAN HUNTER)
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To: muawiyah

One of the culprits is corn syrup in food products. It’s cheap to use and many people are probably allergic to corn syrup but haven’t gotten there yet in their search for answers.


28 posted on 10/02/2007 7:30:32 PM PDT by floriduh voter (TERRI Anti-Euthanasia Ping List: 8mmmauser & I'm 4 DUNCAN HUNTER)
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To: mtbopfuyn

Florida, The Starvation State.


29 posted on 10/02/2007 7:32:34 PM PDT by floriduh voter (TERRI Anti-Euthanasia Ping List: 8mmmauser & I'm 4 DUNCAN HUNTER)
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To: Sun
I can remember when children who used feeding tubes sent Terri Schiavo greeting cards.

(yeah, and hospice would rip all greeting cards out of her room including birthday cards. what evil people to take down greeting cards. Hospice Woodside, 6670 102nd Ave. N. Pinellas Park, Fl

30 posted on 10/02/2007 7:35:21 PM PDT by floriduh voter (TERRI Anti-Euthanasia Ping List: 8mmmauser & I'm 4 DUNCAN HUNTER)
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To: Sun
I can remember when children who used feeding tubes sent Terri Schiavo greeting cards.

(yeah, and hospice would rip all greeting cards out of her room including birthday cards. what evil people to take down greeting cards. Hospice Woodside, 6670 102nd Ave. N. Pinellas Park, Fl

31 posted on 10/02/2007 7:35:33 PM PDT by floriduh voter (TERRI Anti-Euthanasia Ping List: 8mmmauser & I'm 4 DUNCAN HUNTER)
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To: 8mmMauser
The Vindication of Terri Schiavo. (about feeding tubes)

http://www.lifesite.net/ldn/2007/sep/07092005.html

32 posted on 10/02/2007 7:40:06 PM PDT by floriduh voter (TERRI Anti-Euthanasia Ping List: 8mmmauser & I'm 4 DUNCAN HUNTER)
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To: floriduh voter

“(yeah, and hospice would rip all greeting cards out of her room including birthday cards. what evil people to take down greeting cards. Hospice Woodside, 6670 102nd Ave. N. Pinellas Park, Fl”

How sad.


33 posted on 10/02/2007 7:47:47 PM PDT by Sun (Duncan Hunter: pro-God/life/borders, understands Red China threat, NRA A+rating! www.gohunter08.com)
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To: Sun

Terri’s birthday cards ended up outside of hospice woodside on a card table along with drawings from children.


34 posted on 10/02/2007 7:55:02 PM PDT by floriduh voter (TERRI Anti-Euthanasia Ping List: 8mmmauser & I'm 4 DUNCAN HUNTER)
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To: mtbopfuyn
"Thankfully he lives in England and not Florida."

?? What does being in England and not Florida have to do with this. I can't imagine doctors in the US doing anything differently. Perhaps American doctors could find medical treatment to offset the allergies and he could lead a somewhat normal life with medication.

35 posted on 10/02/2007 8:06:20 PM PDT by KoRn (Just Say NO ....To Liberal Republicans - FRED THOMPSON FOR PRESIDENT!)
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To: TruthSetsUFree

Your symptoms less migraines are similar to the ones I had, mostly an overall feeling of not being well. But add to that, a tendency to gain weight and feeling puffy, and a pain similar to angina, but ruled out by doctors. That all went away but comes back at a gallop if I violate my diet. Doc said I may be able to introduce some of the foods after my system readjusts and I now can have small amounts of regular bread without symptoms, a year later.


36 posted on 10/03/2007 2:56:45 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: Ohioan from Florida; Goodgirlinred; Miss Behave; cyn; AlwaysFree; amdgmary; angelwings49; ...
Few know more about feeding tubes, their use, and their role, than Bobby Schindler, brother of Terri.

.............................................

In a panel on life issues, David Prentice, a scientist and senior fellow for Life Sciences at Family Research Council, who has been an expert witness in testifying before congress about embryonic stem cell research, was joined by Schindler and other pro-life leaders.

Prentice presented a detailed explanation of the theory of stem cell growth and the myths and facts surrounding the use of adult stem cells and embryonic stem cells.

The truth is that stem cells are "difficult to establish" in a dish outside the body, whether they are adult or embryonic, Prentice said, but embryonic stem cells are especially vulnerable to developing tumors when grown in a dish.

"The bottom line is, it is the adult stem cells that are the most promising," Prentice said. "Number one, you don't have to kill the donor, and number two, they work."

Answering a question after his presentation, Prentice said he questions the motivation for more and more resources to be spent on stem cell research despite its apparent lack of results.

"They want money to keep their labs going," Prentice said. "This is a critical moment in human history. We have got to stand up and defend life. We have to speak up for those who don't have a voice."

 David A. Prentice, senior fellow for Life Sciences at FRC (L) and Bobby Schindler speak on a panel about Life Issues Sept. 21 in Brandon.

Photo by Joni B.Hannigan

David A. Prentice, senior fellow for Life Sciences at FRC (L) and Bobby Schindler speak on a panel about Life Issues Sept. 21 in Brandon.

Likewise, Schindler said the time has come to accept that euthanasia has become almost commonplace in America.

"One of the frustrations that we find, even among the pro-life community is that they don't see the seriousness of this situation," Schindler said. "Everything has been about abortion for the past 30 years and I don't think [people] understand how widespread this is occurring in our hospices and our hospitals and other places."

Schindler said he and his family, who make up the Terri Schindler-Schiavo Foundation, are seeking to spread awareness about this issue and help people to understand "it's not just about abortion anymore."

Even among Roman Catholics, long known for initiating leadership in the pro-life movement, Schindler said little has been communicated about a recent clarification from the Vatican in Rome explaining a teaching which calls for the administration of nutrition and hydration to people who are in a "so-called vegetative state."

The comment and note, released Sept. 14, said the practice of continuing to provide nutrition and hydration, even to those considered to be in a persistent vegetative state (PVS)—the condition that the court argued that Schindler's sister, Terri, had been in before her nutrition and hydration was removed—was with rare exception "morally obligatory."

Schiavo died at a hospice in Pinellas Park March 29, 2005, from dehydration, 13 days after her nutrition and hydration was removed by court order at her husband's request. Her family repeatedly asked to care for her after she suffered from a brain injury following a collapse resulting from unknown circumstances 15 years earlier.

During the 13 days it took her to die, a contentious battle raged in the courts between her parents and her husband. The world's media camped across the street from the hospice and pro-life proponents and right-to-die advocates squared off on the grassy walks.

Today, Schindler said, it is the consensus that as many as 50 percent of PVS patients are said to be "misdiagnosed." Even so, Schindler said, Terri and other disabled persons ought to be treated with dignity.

In a personal interview before his talk, Schindler told Florida Baptist Witness he believes many people still don't understand Terri was disabled and not hooked up to any life-support machines.

Prominent local, national pro-family leaders gather for Family Impact Summit

8mm


37 posted on 10/03/2007 3:18:41 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: 8mmMauser
Prayers for this young boy.

I have lactose intolerance. It does not seem to be as severe as it once way (got gall bladder out) and I would not wish it on my worse enemy.

38 posted on 10/03/2007 3:22:28 AM PDT by mware (By all that you hold dear..on this good earth... I bid you stand! Men of the West!)
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To: All
Comics not very comical...

I am not yet sure what this effort portends, but they do seem to have one point right. Maybe they can entitle one strip, "When judges order murder." I suspect they won't.

.................................

The Underwire: Why did the National Center for State Courts want to create a series graphic novels?
Mary McQueen: The Terri Schiavo case was one of the watershed events where there was a lack of understanding of how much latitude the judge has in making decisions. There is a need for the average person to have a better understanding of the role of courts as it deals with their personal lives and that courts are not only for criminals or big corporations.

New Graphic Novel: Say "No" to Internet Piracy

8mm

39 posted on 10/03/2007 3:29:52 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: mware

I had thought my own situation was bad, was humbled by hearing how others have suffered a great deal more. All I had was a hint and awareness of what they must go through.


40 posted on 10/03/2007 3:37:56 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: All
We may recall when Dr. King was banned from the school lecture schedule because of un-PC thinking.

.............................

It is regrettable that Roosevelt principal Kathie Danielson refused to allow Dr. Alveda King to speak, because Danielson gave away a rare opportunity to conduct a meaningful debate on the real issue surrounding the so-called abortion controversy.

That issue has nothing to do with whether you are for or against life - as God's living children we are all for life. No, the issue is: Should the government control our most personal and intimate selves - our bodies?

This right-leaning government already dictates upon whom we should bestow our love.

The Terry Schiavo affair [when the government tried to intercede in the decision on whether she should be removed from life support] proved that it wishes to dictate when we should end our lives. King and her sympathizers, with the full support of this government, would dictate to the women of this country when they should give birth. What's next - when we are allowed to sleep and go to the bathroom?

Only by allowing King and her sympathizers to publicly air their draconian viewpoint can we truly realize what they are trying to accomplish: control of each of us down to our heartbeats.

- Ira Lacher,

King speech would have mobilized opposing voices

8mm

41 posted on 10/03/2007 3:43:32 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: mtbopfuyn

touche’ !


42 posted on 10/03/2007 3:54:05 AM PDT by tutstar (Baptist Ping list - freepmail me to get on or off.)
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To: Nightshift

ping


43 posted on 10/03/2007 3:56:39 AM PDT by tutstar (Baptist Ping list - freepmail me to get on or off.)
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To: KoRn
What does being in England and not Florida have to do with this

Two words - Terri Schiavo. Read through the other posts on this thread and attached links and you'll understand.

44 posted on 10/03/2007 4:48:06 AM PDT by mtbopfuyn (I think the border is kind of an artificial barrier - San Antonio councilwoman Patti Radle)
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To: 8mmMauser

Oh yes, I failed to mention that I lost weight going gluten free, also. I wasn’t overweight by much, but I lost my excess 12 pounds without effort.

Be careful going back on gluten after being off of it. I’ve heard horror stories of people going back on gluten and thinking they are fine for awhile, but then their previous symptoms came back worse than before and are then much more difficult to reverse than they were the first time.


45 posted on 10/03/2007 5:31:53 AM PDT by TruthSetsUFree
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To: TruthSetsUFree
I have migraines too but I don't know if the corn, oatmeal, banana allergies have anything to do with it. Oatmeal and bananas are pretty easy to avoid but they put corn into so many different things.

Yep, I have antihistamines and my inhaler with me at all times. When the swelling hits I go for the ice cold water and drink it or apply it to where the swelling, itching, hives, welts are at.

The doctor offered me an epi-pen but at the time I turned it down. I keep trying to remember to tell him I changed my mind but I keep forgetting.

46 posted on 10/03/2007 2:27:45 PM PDT by Freedom Dignity n Honor (There are permanent moral truths.)
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To: TruthSetsUFree

You make a good point. I am tempted to think of it as all over, but have still avoided bread most all of the time. Rye bread and spelt does just fine. We just tend to find foods now which are gluten free, as a matter of how we live. It is neither the problem nor the bother we imagined.


47 posted on 10/04/2007 3:18:03 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: Ohioan from Florida; Goodgirlinred; Miss Behave; cyn; AlwaysFree; amdgmary; angelwings49; ...
Fred and Terri, tar baby redux...

On last month's Terri Dailies, we couldn't avoid noticing how the candidates cleave to principles by how they define Terri's plight.

We see this consistently in most every bashing of the President, as a bookmark to every summary of what is important in the news. It is the libs who remember even if we didn't. Perhaps in his case, it was a mistake of underestimating the enormity of this event. That was part, but moreover, it was a greater mistake in not realizing the impact Terri's plight hangs around the collective leftist neck like an albatross. They are obsessed with it, with wanting to MoveOn, wanting to forget, or minimize, but they just can's shake it. Unfortunately, for Fred Thompson, it was easy for us to predict the media would keep hounding him way beyond what we conservatives perceive as a gaffe to let ride.

Most every day since, it has echoed in all the major bird cage liners. This one is a bit different, coming form the American Spectator...

But if you are going to be the big man on the right, you can't be lazy. Yet you have been so. You have a responsibility to bone up on basic local issues of national import. Any old moron should know, for instance, that you can't go into Florida without having at least thought about what you would say if asked about Terri Schiavo or about the Everglades.

Open Letter to Fred Thompson

8mm


48 posted on 10/04/2007 3:38:05 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: All
Our country is distorted by others depending upon the prism used, in this case, a Czech one. Here, in an apparent attempt to understand what a conservative is, they shape their view by how the leftists define it, plenty of "Was in Peace", "freedom is slavery" mirroring going on here...

Yet this President Bush is not a good scapegoat. Rather than betraying the right, he has given it virtually everything it craved, from humongous tax cuts to conservative judges. Many of the worst errors were championed by conservative constituencies. Some of the arrogance in foreign policy stems from the armchair warriors of neoconservatism; the ill-fated attempt to "save" the life of the severely brain-damaged Terri Schiavo was driven by the Christian right.....................

Is America turning left?

8mm

49 posted on 10/04/2007 3:47:40 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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To: All
Fred and Terri...this time I rest my case.

Terri's plight is the trigger word, a signal to flail into him. There is a reason why, two and a half years later, the lefties cannot let go of Terri's Legacy. They now cue it into most any news organ as a way of defining Fred, whether a leftist or not-so leftist journal.

How long can this go on before Thompson's staff clues him in to the importance of following current events? Although no cable channel could get enough of the Terri Schiavo saga two years ago, Thompson claims he doesn't "remember the details of it." And Everglades drilling is an important issue in Florida -- something one would expect a southern Republican senator to know.

Another Day, Another Gaffe For Fred Thompson

8mm

50 posted on 10/04/2007 3:55:52 AM PDT by 8mmMauser (Jezu ufam tobie...Jesus I trust in Thee)
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