Posted on 12/30/2021 8:00:51 PM PST by DoodleBob
In survey, 19% of people with ME/CFS said health worsened after vaccination compared to 4% reported by controls.
In a recent survey by the You + ME Registry, which gathers research data on ME/CFS, found that the health of people with ME/CFS is significantly more likely to worsen after Covid-19 vaccination compared to controls.
About five months after receiving their first or only shot of Covid-19 vaccine, 19% of survey participants with ME/CFS indicated their health had worsened, 9% reported that it had improved and 73% responded that it had not changed.
This compares to 4% of controls (people who did not have ME/CFS) who said their health had worsened, 7% who indicated it had improved and 89% who reported it had not changed. (See Table 1.)
”The ME/CFS community has raised concerns about how Covid-19 vaccination might affect people with ME/CFS. Our survey suggests that people with ME/CFS are much more likely to report that their health had worsened after vaccination compared to controls,” said Oved Amitay, CEO and president of Solve M.E., which founded the You + ME Registry.
“Yet, vaccination may still be a better option for people with ME/CFS than risking Covid-19 infection and spreading the virus. Individuals and their healthcare providers should work together to make these decisions,” Amitay continued. “Also, these results do not tell us if the reported health changes were caused by vaccination, and more research is needed.”
Additionally, differences in post-vaccine health status by vaccine manufacturer were not statistically significant. (See Table 2.)
Survey results are based on data collected by the You + ME Registry, which gathers and shares research data on post-viral illnesses. Some participants did not answer every question. Survey data were collected between July 14, 2021 and October 22, 2021.
Table 1. Health Status 22 Weeks* After First/Only Covid-19 Vaccine Shot**
| Cohort | Health Did Not Change*** | Health Improved | Health Worsened*** |
| ME/CFS | 73% | 9% | 19% |
| Controls | 89% | 7% | 4% |
*22 weeks is the median amount of time after vaccination that health status was reported by participants.
**Analysis based on 457 total respondents
***ME/CFS and control differences are statistically significant at ⍺=0.05.
Table 2. Health Status 22 Weeks* After First/Only Covid-19 Vaccine Shot by Vaccine Manufacturer**
| Vaccine | Health Did Not Change*** | Health Improved*** | Health Worsened*** |
| J&J | 72% | 8% | 20% |
| Moderna | 73% | 10% | 16% |
| Pfizer | 77% | 7% | 16% |
*22 weeks is the median amount of time after vaccination that health status was reported by participants.
**Analysis based on 457 total respondents
***Indicates differences in post-vaccine health status by vaccine manufacturer were not statistically significant at ⍺=0.05.
I would like to know if the people with chronic fatigue syndrome who felt worse post-shot were more likely to experience a breakthrough infection.
PING
My Mom appears to be dying. Her long in remission cancer kicked back in hard this past weekend about 3 months after her 3rd shot. Connection? I don’t know but I’m suspicious.
Oh my I hope that’s not true! God bless you!
Honestly I’m not impressed by 19% saying they’re worse.
That all means there is the potential for "post-purchase rationalization" where people offset reservations about getting the shot with 'good feelings' even if they feel lousy.
Just a thought.
Let’s start with: “What’s a ME/CFS for $200?” Alex.
My good FRiend, it’s in the title...Myalgic encephalomyelitis/chronic fatigue syndrome.
Thanks!
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