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My wife pointed this out to me, and it made my blood boil! An "Ethics Committee" at a hospital elected to allow a baby born at 23 weeks to die that could possibly live! This original blog post was from August 8th, and the issue is still ongoing between the family and the Hospital.

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They have not fed Emmie-Rose since 9/3/2006! (as of 9/8/2006 at 56 days old)

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This is horrific. Here's a recent blog entry -

September 13th ONE MORE BLOW!!!!
Well here's the deal... We have been on the phone all morning with Docs trying to get her transferred to another Hospital for a Second Opinion. Problem with that is the Docs at U of M are talking these other hospitals out of accepting Emmie-Rose for the Second Opinion that Rightfully We are allowed to receive.

We called Toledo back for a letter of acceptance and explaination to send to the Insurance Company for an appeal. In turn, The Doc tells Us that They have spoken to U of M and U of M has discouraged them from taking her due to another Ethics Committee meeting that We werent even told about or asked if We wanted to attend. The way the Docs at U of M are going We will NEVER get an Unbiased opinion. The Ethics Committee is now involved at Toledo even though they have NOT even assessed Emmie-Rose's condition firsthand and without an overturn decision by that Committee, the Doc that is willing to take her case is not allowed to do so.

They have now taken it upon Themselves to take away her TPN (nutrients She needs to grow, her "food") and her Blood Transfusions, Platelets and Lipids. She has had all of these things since birth until last Sunday when She had her surgery. They told Us She would die in two days, a week later She is still here and We asked them to give her her TPN, Blood and Platelets back and they did (yesterday). Yesterday they called a meeting to let Us know that "THEY" have "decided" amongst themselves that they are going to NOT feed her anymore or offer Her anymore Blood, Platelets or anything else that will help her to grow. So basically they want to starve her and let her blood run out so She can die. What does that sound like to you??? Torture if you ask ME!!

We just dont understand how a group of people who call themselves "doctors" can just "decide on a whim" that because this Child isnt "PERFECT" in their eyes that She isnt worth fighting for. They keep feeding Us the line "Well, do you know how hard it is going to be down the line/in the future". WHO CARES ABOUT TOMORROW, Lets work on today. They feel that Emmie-Rose is a "dead" issue and they have been just waiting for her to die. GUESS WHAT PEOPLE, LOOK WHO's STILL HERE!! NOW WHAT????????????? So their next course of action is to keep everything away from her that She has needed since birth and see if that makes her die. They let her blood get so low that that could have killed her. They are tired of dealing with Emmie-Rose because they see Her as "imperfect" and thats what they want to save is the ones that are going to make it "Long term". Who knows but the Lord who will make it the next 2 minutes let alone a yr from now. Obviously, U of M is trying to play "god" here and take it amongst themselves to kill Her at this point.

We need an Unbiased Second Opinion that We are entitled to as well as requested from the U of M team. We need someone out there to give Our Little Girl the chance. We want Her to live or die with Respect and Dignity that any Human being has the right to have. U of M is just completely giving up on a Living Human Being and that is NOT Right. We need to fight for Our Loved Ones and Stand Up for them when No One else will. Emmie-Rose is a fighter and until the Lord calls Her home, Mommy and Daddy are going to be fighting for Her every step of the way. There is a reason She is here and touching so many lives in the process. As long as She is going to fight, So are We.

Please Help Us!! IF Anyone has any contacts to help Us out with this situation, please either post or email Us. We need help from Everyone to Help Our Little Girl to get the Care She so deserves. This is a very time sensitive thing, We need to move quickly before U of M decides to take things into their own hands with more bad decisions.

Love,
Stephanie and Chris
Emmie-Rose's Mommy and Daddy

We need help finding a Doc to accept her and look at her without hearing one side only. If anyone knows a Neonatologist, a Ped Surgeon, Ped Doc with Nicu experience... Please pass Our story on. We need to move pretty fast.

Thanks for reading!

Please Continue the Prayers!!

You GROW GIRL!!!

This story has me so damn mad. It is as though the hospital, more than anything else, fears that this little girl will recover, thus proving them wrong.

I just don't get it! There she is, LIVING. How could they deny food and nutrition?? Perhaps she is destined to die soon, but who knows? They were wrong about her only having 2 days to live. And ultimately, every single one of us is born terminal - we are all going to die eventually.

If this were one of my children, this would already have escalated into a hostage situation. I would not hesitate to put a gun to the doctor's head and say "Feed her or you die." Especially at this point.

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Get her to a Catholic Hospital ASAP.

PAINFUL UPDATE: Please pray for Emmie-Rose's parents and siblings...

Sept 19th A Very Sad Day!!!

To All of Our Loving, Caring Readers out there, Ms. Emmie-Rose fought Her last Battle tonight. Our Baby Girl passed away tonight around 9:45 p.m. She went fighting all the way. She is a True Hero in Our Eyes!! She has touched alot of lives in the short time She has been with Us. We are so proud of Her and all the things She has done in Her 66 Days with Us.

We Love You Sweet Princess!!! Forever and Ever, NO MATTER WHAT!! We know You are in Heaven now looking down on Us. We are so happy to know that You arent hurting anymore. Please know that Mommy and Daddy adored You and Loved You and still Love You now.

Further Information on Funeral arrangements will be posted at a later date.

Thanks again to All that Care!

Love,
Stephanie and Chris and Miss Emmie-Rose May You Rest In Peace Sweet Princess

(Prayer posted by Emmie-Rose's mommy)

My Prayer to You Miss Emmie-Rose

Lord, She is Yours Now
Please take care of Her
We love Her So Very Much
But know You Love Her too.

We wish We had More time with Her
But We understand You have other Plans
We wont question You Dear Lord
Please Just keep Her in Your Hands!!

Watch over Her and Hold Her tight
As She now has seen the Light
Help Her understand the Way
Until We meet again one Day.

Love, Mommy

May You Rest in Peace Sweet Princess

September 19, 2006

9:47 p.m

Prayers for the family of Emmie Rose.

A CHILD LOANED

"I'll lend for a little time a child of mine." He said."For you to love the while she lives, and mourn when she is dead.

It may be now or six or seven years, or twenty two or three,But will you, till I call her back, take care of her for me?

She'll bring her charm to gladden you, and should his stay be brief,you'll have her lovely memories as solace in your grief.

I cannot promise she will stay, since all from earth return,but there are lessons taught down there I want this child to learn.I've looked the wide world over in search of teachers true.And from the throngs that crowd life's lanes, I have selected you.

""Now will you give her all your love nor think the labor vain,nor hate me when I come to call, to take her back again?"

I fancied that I heard them say, "Dear Lord, Thy will be done,For all the joy thy child shall bring, the risk of grief we'll run.

We'll shelter her with tenderness, we'll love her while we may;And for the happiness we've known will ever grateful stay.

But should your angels call for her much sooner than we planned,We'll brave the bitter grief that comes, and try to understand!"

Author Unknown

A sad and resolute ping from Terri's Legacy List

May Our Lord embrace little Emmie-Rose and guide and strengthen her parents and may Our Lord provide us all who care with the resolve that her passing be not in vain.

Terri SEPTEMBER Dailies

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Prayers for Emmie-Rose and all who loved her.

Prayers that the ethics committee will see the error of their ways.