Posted on 01/16/2012 1:40:14 PM PST by Steelfish
Louisiana Toddler Dies After 2-Year Battle With Rare Skin Disease Published January 16, 2012
[Sad Pic in URL]
A toddler succumbed to a rare skin disease, which caused his skin to blister at the slightest amount of movement, the Daily Mail reported.
Tripp Roth, 2, from Ponchatoula, La., died in his mother’s arms Saturday after battling junctional epidermolysis bullosa (junctional EB). EB affects one in 50,000 live births, while junctional EB affects one percent of those with the disease. Babies born with the disorder do not have the protein necessary to hold the outer and inner skin layers together, causing any movement to create friction and blisters.
The blisters can develop anywhere on the skin, particularly in the mouth and around the eyes. Heat can worsen the disease. Tripp was diagnosed immediately after birth, when doctors spotted blisters on his head and back. There is no cure for junctional EB, and he was not expected to live past a year. Trip died just four months shy of his third birthday.
Due to his condition, he could not even be bathed without powerful sedatives. He also struggled with breastfeeding because of sores in his mouth, so doctors used a feeding tube instead.
Three months after Tripp was born, his mother Courtney Roth, 26, began a blog to raise awareness for EB.
(Excerpt) Read more at foxnews.com ...
His mother’s blog is amazing. Incredibly powerful.
Poor child. RIP.
Condolences to the family.
Prayers sent.
A friend of mine had a nephew with this horrible condition. His parents were never able to hold him. With great care he lived past his toddler years but finally succumbed.
Heart wrenching.
Lord comfort an strengthen this family in a time of great trouble. Welcome a new angel into Your Kingdom.
AMEN
May this baby RIP and may the mother be comforted that she was able to know and love her baby.
I had to write a research paper on EB about 4 years ago. These kids are often called “Butterfly Children” since their skin is as delicate as butterfly wings. Obviously, this is a very specific disorder within that disorder. How sad. Even our skin is made in marvelous and wondrous ways. We take way too much for granted.
I know somebody with this, I wouldn’t wish it on my worst enemy.
Just checked out the blog...broke down. I pray for that dear mom who is grieving right now. I’m sure she’s helping many people.
Holy Mother of God. Read some of the mom’s blog posts— what a woman.
Amen! May he rest in the Arms of Angels!
Now my screen is all blurry. I have a little baby girl that turns 17 this year. Thank You Lord for all Your Blessings.
Please Bless this family.
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