They declared me PVS (I know... that’s not the same as brain dead) and tried to get my mother to sign me over to an institution without even seeing me. They told her that she could have other children and to let me go. They told her that I’d never eat, learn how to use the toilet, or speak. That I was a ‘lump’. A vegetable.
(On some days I would have to grudgingly admit the ‘lump’ part - that’s still a little insulting - but I can use the toilet just fine and I do cook a mean pot-roast.)
It took three months before I cried for the first time. Then I wouldn’t shut up. (That was the first time that I’d ever reacted to pain. My poor mom was dressing her ragdoll with cloth diapers and accidentally pinned the diaper to the baby. I was finally uncomfortable enough to let her know about it. Her guilty admission was that she was so delighted that I was crying like a normal baby - for the first time - that it took her more than an hour to discover the pin. Poor mom! She was trying! lol!)
I healed. I did well. I went to college and married a great guy (who doesn’t see anything abnormal about me... okay, I’m as abnormal as everyone else. I’m sorry) and we have two grown kids that we love to death. First grandchild came this year.
So let the MOM rock. Let her fight and do her thing. She’s feeding her baby’s brain fish oil and fighting for her child.
And, even if the situation were hopeless, isn’t that what moms are supposed to do?
Wow, wow, wow! Thank for sharing your story, I am truly moved.
I agree with what you are stating, it IS what a Mother does.
Will keep this child in my prayers. Looking so forward to see what happens next.
I also thank you for sharing your story-You are a living example of why it is best to side with life. Doctors just don’t know everything.
“So let the MOM rock. Let her fight and do her thing. She’s feeding her baby’s brain fish oil and fighting for her child.”
I agree - let mom do her thing. Of course, if this girl is declared “alive”, she then becomes the financial responsibility of the taxpayers. Right now all her care is at someone’s private expense (or probably being provided at little or no charge by the hospital).
“The uncle would not reveal Jahi’s location. Dolan said he would neither confirm nor deny published reports that she is in the pediatric intensive care unit at St. Peter’s University Hospital in New Brunswick, N.J.
“Nor would Dolan say who is paying for Jahi’s stay. He says the latest legal maneuver is not about money, but he acknowledged that ‘she would be eligible for the same state benefits as every other person not brain-dead on a ventilator, and who gets full medical care.’”
Thank you for telling your story, Marie. It truly is moving, and it shows how some cases merely appear hopeless when really there is always hope.