Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
You deserve better treatment than this.
Prayers up as always. God does not test you past your strength but He sure seems to cut it close sometimes.
So sorry to hear. I have nerve damage in my hands and arms and suffer from the same symptoms you describe. However I am better some days so I have relief. I hope you will soon get some relief also.
“Ear! Puff this”
I’m serious. It helps many others in your plight and may give you a couple of hours of your life back.
I agree with Corporate Stepsister. You deserve better care, and to have the medical team take the time/caring to get you the very best treatment they can provide, regardless of time consumed Let’s pray your next adjustment is successful.
Don’t let them get away with that. Insist they give you the time you need.
Praying extra hard for you tonight. (((Hugs)))
Praying for the device to be properly positioned and adjusted, God’s wisdom for your medical practitioners, praying for your comfort and relief from pain.
I’m sorry your are still in so much pain. Prayers continue...
BTTT
Except for my dentist, I’m finding I have no confidence with those in the medical community lately. Good luck to you.
Prayers continue for you, FRiend.
Trussell,
God’s Word says there is life or death in the tongue. He also says we can speak to things in our live’s and they shall be removed and by Jesus’ stripes we were healed.
Father God,
In the name of Jesus we speak to the nerves in Trussell’s body and command them to come alive. Nerves, come alive! Hear the Word of the Lord!
We ask Holy Spirit, “Breath new life into Trussell’s nerves and body (and all the other Freepers who are suffering with similiar maladies) that she may have wholeness and fullness of life.”
Jesus, You bore our illness and our afflictions on the cross. By Your stripes we were made whole. We thank God that You won the victory!
Father God, we ask for believers to surround Trussell with love and that she will have comfort and relief from all pain. We give all that concerns her to You because You are rest, You are peace.
Give the doctors and nurses competance and compassion as they treat Trussell.
We believe in miracles. You make a way where there is no way. Nothing is impossible for You!
We give God the glory for the great things He has done though His Son Jesus. In Jesus name we pray. Amen.
Amen...and thank you!
Stars, I’m standing in agreement with your prayer.
Trussell, prayers continue on your behalf— that all your needs will be met — health, finances, and peace of mind.
Things will get no better until we can get 0’care repealed and the illegal invaders tossed off our medical care systems.
Report: 125,000 illegals in California qualified to be covered by Medicaid
http://americanthinker.com/blog/2014/02/report_125000_illegals_in_california_qualified_to_be_covered_by_medicaid.html
War on Seniors
http://www.washingtontimes.com/news/2014/feb/28/weber-obamacares-punch-to-home-health-care/
Medicare And Medicaid Fraud Is Costing Taxpayers Billions
http://www.forbes.com/sites/merrillmatthews/2012/05/31/medicare-and-medicaid-fraud-is-costing-taxpayers-billions/
Anchor Baby Outrage: Americans Pay BILLIONS for Illegal Alien Births (Video) http://toprightnews.com/?p=1333
Not only do we pay for them to be born here, then there is the food stamps, welfare, Medicaid, cell phones, school and the Judicial system and I am sure many more we could add that ILLEGAL INVADERS are not entitled to.
Sen Dems Why Didn’t some one tell us Obamacare would CUT MEDICARE!
http://floppingaces.net/most_wanted/senate-democrats-why-didnt-someone-tell-us-obamacare-would-cut-medicare/comment-page-1/
we do have money so that the obamas can take pricy vacations, golf trips and clothing. her last dress cost us $12K Mooch’s $12 K dress YOU paid for.
http://townhall.com/tipsheet/katiepavlich/2014/02/14/the-irony-of-michelle-obamas-10000-dress-n1795008
Chinese Prostitutes and Brazilian Cotton Farmers
http://www.foxbusiness.com/on-air/stossel/blog/2011/06/14/chinese-prostitutes-and-brazilian-cotton-farmers
Amen!
Amen. T, hang in there. Prayers ongoing.
(((((Heartfelt Prayers Ascending)))))
Well, I’ve been reprogrammed. I have the right hip, both legs, the lower 1/3rd of my back programmed. I am now able to sleep on my right side which is how I am most comfortable. I am still having to take the dilaudid, gabapentin and amitriptiline and if I don’t take it, the pain gets so bad I cry. My legs feel better, but from what I can gather, the back will never be free from pain. It doesn’t even seem to have lessened the pain in my back. I get better coverage when I lean back. It seems to dig deeper into the nerve and nearly locks me up in that position with the strength of the electrical impulse.
The doctor says my nerve damage is really bad and that causes them problems for programming, they can’t find the location for the nerves. I didn’t know the nerves change places... If they can’t get me the relief, soon...I’m going to have the unit removed. This isn’t good when I need relief in certain areas and they won’t work with me as long as needed. One of the technicians always seems to be in a hurry, but the other one actually spent time with me and made sure the right hip was added to the other areas that were already covered.
I have an appointment to see my doc on the 27th for my hands and arms. Things are weak and painful, lots of numbness, tingling, like they are waking up from being asleep but yet so numb I don’t know what to do to make them feel better. It took me over 20 minutes to get up my ramp after checking the mail a few days ago...I thought I wasn’t going to make it. I can’t close my right hand to grip anything and that makes it really difficult to propel my chair. I kept looking around for someone who could help me get up the ramp, but there was nobody driving by or walking their dogs at that time. For the last 2 days, the mail person has delivered the mail to me at the door so I don’t have to go out to the box. It seems as though she plans to do that constantly, so as long as she is working the route, I shouldn’t have to go to the box...that would be awesome. I’m thinking the doctor may recommend an electric chair or a scooter since I am having so many issues.
Anyway...long enough update for you all? Sorry for bending your ear so much. Hugs to the best prayer warriors ever! God Bless you all!
Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.