Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
FMCDH(BITS)
trussel, i’m sorry that you are suffering so.
still praying for His perfecting intervention for you and yours!
hang tough my FRiend.
Stuck right there with ya! Not everyone is good. @ driving a wheelchair!
I can't say that I have...except that pain happens and doctors aren't miracle workers...they can't fix it. I know God can, in his time, fix this...I hate waiting for His time!
I use to be VERY good at driving a wheelchair until I started having troubles with my fingers on the right hand and my arm/shoulder on the left. Now I just don’t have the strength to make it go. I sure wish I could find out what is happening to me.
Prayers for you and your relief. Today is a great day, especially at 3pm, to join your suffering with our crucified Lord. While he doesn’t wish you physical suffering, it is a gift you have today to share with Him.
“I sure wish I could find out what is happening to me.”
I think I’m remembering that all this started when you sat down on a chair that wasn’t there. Or was that someone else? If this is an injury... why all this stuff with your hands???
Could the pain in your hands be caused by a medicine they are giving you? I know that people will get a med for one thing, and another thing will go wrong, and they get meds for that, then something else, and all the while it’s the first med that is causing the problems.
trussell, you need better doctors! Something’s not right.
Thanks for the update. I know how tough it is and can empathize with you.
Lifting your needs in prayer now.
I remember you saying you’ll likely get a script for a power chair. I know you’re looking forward to that! Hold on a bit longer.
This started before the fall. I had already injured my back and had back surgery for that and then the fall...I had already been diagnosed with permanent nerve damage because of the prolonged pain I suffered before the back surgery. I also have failed back surgery syndrome, diabetes, controlled hypothyroid. Now they are going to test for arthritis, including rheumatoid arthritis that could be affecting my hands. I don’t know if any of my meds could be causing this...I’ll be sure to ask the next doctor I see!
I would rather walk again...but if I can’t, I would like to be able to have SOME freedom, an ability to get around, to get out and check my mailbox and not get trapped outside by my weakness. I’m tired of pain.
Don’t give up hope. Perhaps the Lord shall decide soon for things to change for the better for you.
Do you have Obamacare??
Look in your private mail please
I was in a wheelchair in 2010 and wasn’t sure if I would get better or steadily decline. The pain was excruciating, but even so, my muscles were too weak to hold me up, and I’m petite.
The situation seemed hopeless at the time, so I do understand.
Lord Jesus Christ, see the suffering of Thy servant.
In the name of the Father, and of the Son, and of the Holy Ghost, amen.
Not knowing is hard. I have CRPS in both legs & feet but it is affecting my whole body. Everyday is different. I hope this all brings you to a point where you feel like you have a life.
Thank you for keeping us informed. Prayers continue...
Please don’t give up! You are a brave man.
Continuing to pray for you. Prayers UP!
Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.