Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Thank you sooooo much. I am definitely getting a worse headache with this....they didn’t say if that was a bad thing that I needed to get hold of them over. I’m going to ride it out and see if it clears up enough that I can sleep. God Bless you all for keeping me in your prayers!!
Thank you for the prayers my friend! ...and thank you for keeping it to yourself that myelograms are painful until it was over! :-D
I’m just praying everything starts falling into place and life gets easier to manage!
God bless you too trussell. I’m praying for good news for you.
Thank you so much. My freeper friends/prayer warriors mean the world to me. I can’t thank you enough for keeping me in prayer all this time.
Prayers the very best wishes continuing for you, trussell.
t, we are all with you in thought and prayer! Keep the faith, my sister!
Thanking the Lord that that procedure is behind you, and you’ll soon be hearing positive news.
You are all so amazing. Thank you again for all your prayers and emotional support.
I knew that wouldn’t be helpful.
One day at a time. You will get to where you want & need to be!
FMCDH(BITS)
Thank you. I pray too for the second part of your post. I don’t know what I’ll do without that treatment. I do believe I will be sitting(laying) at the house in tears. I can’t imagine not having pain medicine. Thank you for your thoughts and prayers.
Lord Jesus, give courage to Thy long-suffering servant.
In the name of the Father, and of the Son, and of the Holy Spirit, amen.
Did they do a “blood patch” when they were done? I’m sure you know they take some of your blood and replace the spinal fluid with when they finish. My better half had a tap done one time and the did NOT do a blood patch and she suffered for a week before things finally settled down. Hopin’ for the best.
Thank you for keeping us informed. Prayers continue...
EEEEk...I have no idea. I’ve been laying down and the headache is better, but not sure what it will do when I get back up. I just look forward to getting the results. I pray it’s something that is fixable or that they will give me something with a motor so I can go outside on my own!!!
My wife has had myelograms, the last was for the entire spine.
One of the things they should have told you is that to avoid severe headache you should stay lying down for 24hrs, only getting up to eat & for potty breaks etc.
I hope this means there’ll be less pain!
BTTT
trussell’s update....keep those prayers coming please.
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