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Even huge tumour can't secure care in Ontario
Globe and Mail ^ | March 11, 2008 | LISA PRIEST

Posted on 03/12/2008 1:34:22 PM PDT by socialismisinsidious

Inside Sylvia de Vries lurked an enormous tumour and fluid totalling 18 kilograms. But not even that massive weight gain and a diagnosis of ovarian cancer could assure her timely treatment in Canada.

Fighting for her life, the Windsor woman headed to the United States. In Pontiac, Mich., a surgeon excised the tumour - 35 centimetres at its longest - along with her ovaries, appendix, fallopian tubes, uterus and cervix. In addition, 13 litres of fluid were drained during that October, 2006, operation.

And there was little time to spare: Had she waited two weeks, she would have faced potential multiorgan failure, rendering her unstable for surgery, according to a letter from Michael L. Hicks, who performed the four-hour operation at St. Joseph Mercy Oakland.

"Based on my exam and experience as a gynecological oncologist, I felt it necessary to perform surgery within two weeks," said the letter written by Dr. Hicks, provided to Ms. de Vries's lawyer, Kate Sellar.

But a devastating cancer diagnosis was only the beginning of Ms. de Vries's troubles.

The Ontario Health Insurance Plan says it won't pay for the $60,000 cancer treatment because Ms. de Vries did not fill out the correct form seeking preapproval for out-of-country care.

As well, it says no medical documentation was submitted that indicated a delay in obtaining the service in Ontario would result in death or medically significant, irreversible tissue damage.

That administrative misstep has left Ms. de Vries, a 51-year-old corporate communications manager, with a staggering cancer bill. She has drained her savings, maxed out her credit cards, taken out a line of credit and relied on friends to hold a spaghetti-dinner fundraiser, which earned $11,125.

"I feel abandoned; I was fighting for my life," Ms. de Vries said. "... I definitely would like to get some money back but more importantly, I would like to see the situation rectified so [other patients] don't go through this."

Ms. de Vries's case raises questions about OHIP's out-of-country health coverage program, which was put under a review more than a year ago after cancer patient Suzanne Aucoin of St. Catharines, Ont., was denied funding for treatment she received in the United States.

Only after ombudsman André Marin intervened was Ms. Aucoin reimbursed $76,018.23 in January, 2007, to cover costs associated with the colorectal cancer drug Erbitux, among other expenses and legal fees. (She has since died.)

At the time, Mr. Marin described the out-of-country approval process as "literally impossible for patients and physicians to understand."

Just two months before Mr. Marin made those comments, Ms. de Vries was trying to get access to that same program.

To have an out-of-country treatment approved, the procedure must not be performed in Ontario, cannot be experimental and should be deemed medically appropriate. However, patients can have out-of-country treatment funded even if it is available in Ontario so long as there is a delay that would cause irreversible tissue damage or death. Part of the form must be filled out by the patient's physician.

Patients denied preapproved, out-of-country treatment can appeal their cases to the Health Services Appeal and Review Board. And that is what OHIP has suggested to Ms. de Vries.

But her lawyer, Ms. Sellar, said such an appeal would be futile: Since Ms. de Vries did not fill out the out-of-country form before receiving treatment in the U.S., she cannot win the appeal.

Health Minister George Smitherman has the discretion to reimburse Ms. de Vries for treatment, if he chooses to do so. Ms. de Vries said she contacted her MPP, Sandra Pupatello, about it. In the end, she was told she had to go through the appeal process.

Bill Hryniuk, a past chairman of the board for the Cancer Advocacy Coalition of Canada, said cases like Ms. de Vries are "happening quite a bit." The problem, Dr. Hryniuk said, is that "no one is in charge. No one is in charge of the case and the patient bounces around. ... It really is a bad system. Really, it's no system."

Even after Ms. de Vries obtained a CT scan in the U.S. that suggested she had ovarian cancer, she still couldn't get treatment in Ontario. She was referred to a gynecologist who would not take her as a patient because she had dismissed his practice partner some years earlier. Another gynecologist said he did not believe she had ovarian cancer. And a general surgeon said she needed a gynecological oncologist.

At that point, in October, 2006, her condition was worsening - so she tapped her savings and went to the U.S.

After the surgery, she tried to get into the cancer system in Windsor, this time for chemotherapy. In November, she was told there was a six-week wait for chemotherapy, and she ended up getting chemo in the U.S. as well.

Ron Foster, vice-president of public affairs and communications for Windsor Regional Hospital, which includes the Windsor Regional Cancer Centre, said such a wait even back in 2006 would have been unusual - that it may have been as long as three weeks. Today, chemotherapy begins within one week of being referred by a doctor, he said.

Several improvements have also been made to the out-of-country process. A bulletin describing the program was mailed to the province's physicians, hospitals and associations in October, 2007. The next month, a special website was created. Those who receive denial letters are now provided a special telephone number to call for clarification on why the request was rejected, said Health Ministry spokeswoman Joanne Woodward Fraser.

But all that was too late for Ms. de Vries.

"I feel disappointed that when you're going through something like I did, you had to think about financial issues. It put a tremendous amount of strain on us," she said.

Her husband, Adriaan de Vries, an IT systems engineer, said they had no choice but to go to the U.S. "Nobody was in charge," he said, "and nobody really cared."


TOPICS: Government
KEYWORDS: bureaucracy; canada; govhealthcare; hillarycare; nationalhealthcare; socializedmed; socializedmedicine; universalhealthcare
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1 posted on 03/12/2008 1:34:23 PM PDT by socialismisinsidious
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To: long hard slogger; FormerACLUmember; Harrius Magnus; Lynne; hocndoc; parousia; Hydroshock; ...
Socialized Medicine aka Universal Health Care PING LIST

FReepmail me if you want to be added to or removed from this ping list.
2 posted on 03/12/2008 1:35:42 PM PDT by socialismisinsidious ( The socialist income tax system turns US citizens into beggars or quitters!)
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To: socialismisinsidious

It’s “free” when you can get it I guess. But this would never happen under hillary care.


3 posted on 03/12/2008 1:37:24 PM PDT by beltfed308 (Heller: The defining moment of our Republic)
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To: socialismisinsidious

There, but for the grace of God, goeth Hillary.


4 posted on 03/12/2008 1:37:29 PM PDT by Sender (Sometimes I sits and thinks, and sometimes I just sits.)
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To: socialismisinsidious
"the procedure must not be performed in Ontario, cannot be experimental and should be deemed medically appropriate"

Does DEATH count as medically appropriate? LOL!

5 posted on 03/12/2008 1:37:45 PM PDT by BossLady ("People will do anything, no matter how absurd, in order to avoid facing their own soul" - Carl Jung)
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To: beltfed308
Mr. Marin described the out-of-country approval process as "literally impossible for patients and physicians to understand."

Which, of course, is the entire point.

L

6 posted on 03/12/2008 1:39:17 PM PDT by Lurker (Pimping my blog: http://lurkerslair-lurker.blogspot.com/)
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To: socialismisinsidious

Hillabama Universal Government Health Care is coming to your town.

Aren’t you pleased?


7 posted on 03/12/2008 1:39:19 PM PDT by upchuck (Who wins doesn't matter. They're all liberals. Spend your time and money to take back Congress.)
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To: socialismisinsidious

Government health care means no health care.


8 posted on 03/12/2008 1:39:29 PM PDT by Jim Robinson (Our God-given unalienable rights are not open to debate, negotiation or compromise!)
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To: socialismisinsidious

That’s the future of US healthcare if the dems get control of congress and the WH.

Then where do Americans go for timely care? Nowhere. We start dying on waiting lists.


9 posted on 03/12/2008 1:42:20 PM PDT by Secret Agent Man
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To: beltfed308
But this would never happen under hillary care.

This is the answer I always get from libs I know when I point out how socialized healthcare fails everywhere else in the world.

10 posted on 03/12/2008 1:42:37 PM PDT by MrB (You can't reason people out of a position that they didn't use reason to get into in the first place)
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To: Jim Robinson

Government healthcare means excellent healthcare for the political elites. All others wait in line.


11 posted on 03/12/2008 1:44:00 PM PDT by TexanToTheCore (If it ain't Rugby or Bullriding, it's for girls.........................................)
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To: socialismisinsidious
Which do you expect to be more profitable in case of Hillarycare:

1. Medical cruise ships (we are now outside the 3 mile limit, you may begin surgery)
2. Bahamas hospitals
3. Cuba as Michael Moore worships it now
or 4. Cuba after Raul is shot and Fidel is dug up, shot and reburied?

12 posted on 03/12/2008 1:46:38 PM PDT by KarlInOhio (Rattenschadenfreude: joy at a Democrat's pain, especially Hillary's pain caused by Obama.)
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To: MrB
This is the answer I always get from libs I know when I point out how socialized healthcare fails everywhere else in the world.

Exactly! They quote these countries as examples but ignore stories such as this one. I don't think for a moment these are isolated cases either.

13 posted on 03/12/2008 1:47:19 PM PDT by beltfed308 (Heller: The defining moment of our Republic)
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To: Sender

Dems rush in where angels fear to tread.........


14 posted on 03/12/2008 1:47:28 PM PDT by Red Badger ( We don't have science, but we do have consensus.......)
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To: Jim Robinson

If we are forced to take socialized medicine, where in the world will Canadians go to get healthcare?................


15 posted on 03/12/2008 1:49:16 PM PDT by Red Badger ( We don't have science, but we do have consensus.......)
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To: Secret Agent Man
We start dying on waiting lists.

Then they'll take credit for solving the Social Security problem.

16 posted on 03/12/2008 1:50:48 PM PDT by Tijeras_Slim
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To: KarlInOhio
3. Cuba as Michael Moore worships it now

It's funny that you should mention him because when I saw the headline I thought this article was about him.

17 posted on 03/12/2008 1:51:19 PM PDT by Jeff Chandler (It takes a father to raise a child.)
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To: Tijeras_Slim

It’ll work so well someone will sponsor the “Logan’s Run” act.


18 posted on 03/12/2008 1:53:37 PM PDT by Secret Agent Man
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To: socialismisinsidious

Some would argue that this is an anecdotal story. I don’t think that it is, though, because of a similar incident that claimed the life of one of my ex girlfriend’s family members. That person was preliminarily diagnosed with breast cancer. However, final diagnosis (MRI and simple biopsy) was put off for about six months. In that time, the cancer metasticized. Treatment was never approved because it was deemed to be futile, and she died shortly thereafter. The irony is that because she was never treated, the gov’t stats didn’t count her case as a death caused by poor treatment or anything like that. Basically, the delay and her death before treatment helped keep their numbers looking good. This was many years ago, but I see nothing here to indicate that anything has changed.

Socialized medicine is a travesty. Yes, our healthcare system is a mess, but that’s BECAUSE it is partially (more than partially, really) socialized already, and lawsuits, regulation, insurance compliance, Medicaid compliance, Medicare compliance, etc., etc. are out of control. MORE socialization and regulation is just pouring gas on that fire.


19 posted on 03/12/2008 1:53:56 PM PDT by piytar
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To: Jim Robinson
Government health care means no health care.

No, it means the government gets to play God. It will be a nameless, faceless bureaucrat who will decide who lives and who dies. And money or more succinctly the money the politicians have available to buy future votes will be the determining factor.

20 posted on 03/12/2008 1:56:58 PM PDT by mort56 (If you think healthcare is expensive now, just wait till you see what it costs when it's free)
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