That last sentence seems to be about right.
It is mind boggling to me.
Some people are not persistant. They trust the Dr. Those people would have ended up with a lot of damage once the damage finally showed up in a basic test.
And for Seniors...Lord help them trying to deal with all of this and Medicare
When one DR said to me after a test...we will just wait and watch it.... I walked out of there cussing to myself saying you dont know who you are dealing with...there will be no waiting and seeing with me. “You’re fired”...Trump Apprentice Style before I got to my car.
On to the next Dr.
And I encourage people to look at the Muscular Dystrophy list of diseases (yours is not on it) and use them as Muscle to back you up. It has helped somewhat in getting through on one of the rare issues.
A long time ago when I still had cable there was a show called "Medical Mysteries" or some such. It detailed the lives of people who went for years, from one doctor to another until they finally found a competent doctor able to diagnose their problem.
Quite often the diagnosis eventually uncovered was a relatively common problem like a tumor or cancer.
I had a friend who was fed painkillers for months by a doctor before he finally got a second opinion and found out he had stage four cancer. The original doctor had never done any sort of scan, but just kept increasing the painkillers as the man's pain increased.