Posted on 03/15/2020 10:51:27 PM PDT by TECTopcat
We're home bodies also. My wife prefers it that way. She's been fighting this for 25 years now. Not currently in treatment, last chemo was over a year ago, and recent checkups are clear. We have friends and relatives that have had their share of medical issues, so she's able to relate to them. One friend has had issues since her twenties, now in her late fifties and recently went through a kidney transplant. Worse for the friend, as she is taking anti-rejection drugs and must be diligent to avoid infection from others. Whole lot of hurt in life, and you can't feel alone (although I can understand when my wife says "why me?"). Plus she knows her family needs her (grandchildren chat almost daily with her).
“Makes me think about how my AML leukemia actually changed my DNA. It translocated the (4,12) chromosome .”
As a fellow blood cancer patient (Mantle Cell Lymphoma) who also has genetic mutations associated with my disease (not the same, though), I’m not sure cancer changed the chromosomes or was caused by them. I actually believe it is the latter.
In any event, you and I both are in the high risk with heavily comprimised immune systems. I have IVIG treatments to offset that about every 60 days. It has kept me flu and cold free for many years.
Good luck!
From someone who tracks and admires David Sinclair, thank you for posting this! There is a world of good information in his article. I recently purchased his book, Lifespan, Why We Age and Don’t Have To. http://bit.ly/2r0silo. I have followed his lifestyle prescription for many years. I only recently discovered it has been scientifically proven when I discovered his book. If you are interested, here is a YouTube video where he discusses his theory — http://bit.ly/2OVFvEb.
This has sure worked for me and apparently from his discussion for the mice, too :-).
IC Clearly
Those IVIG treatments are fantastic, aren’t they? I was getting them for a while since my IGG hovered around/under 400. But, then my kidney numbers got bad. So, I had to stop.
I’m glad you’re able to receive them. With all the news about social distancing and germs - just as myself - you’re probably saying ‘this is what I do everyday!’ These habits a deeply ingrained. Stay healthy. Prayers & blessings.
“I’m glad you’re able to receive them. With all the news about social distancing and germs - just as myself - you’re probably saying ‘this is what I do everyday!’ These habits a deeply ingrained. Stay healthy. Prayers & blessings.”
Hi Holly,
You are 100% correct — every single day :-).
By the way, you might check with your nephrologist, but IVIG, to the best of my knowlodge, does not cause kidney problems (depending on the manufacturer and proper administration/infusion). Proper infusion is key, though. My IgG stays in the 700 range.
I go to MD Anderson and my doc there fully supports the treatment as does my neph doctor. My version of lymphoma actually showed up in my kidneys six years ago and knocked them completely out (very rare). I was on dialysis for three years but came off after three years (with no transplant). I still have a low GFR but am not on dialysis and have been getting IVIG for almost six years.
We would be toast if we got this disease. For all practical purposes, our immune system is a big fat zero.
God bless you as well! He keeps us going with a little help from modern medicine. For us, “there is nothing new under the sun.” :-).
IC Clearly
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