Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Your “landlord” sux!!!
Prayers that this surgery gives you the relief you need!
Thank you for keeping us informed. Prayers continue...
Trussell, I sincerely hope your Landlord just orders something in. Glad you got the tumor out and can at least eat something normal.
BTTT
That didn't happen...Cody and I had to cook. We made ground hamburger, egg noodles, golden mushroom soup, frozen vegies and garlic mashed potatoes...mixed together into a casserole. Pretty tasty, but was more work than I wanted to have to do after having the surgery.
I'm still sore today, praying for relief from the pain. Have an appointment with my pain management doc tomorrow, going to discuss the pain pump...don't know if I can have that and the stimulator but I need something more than I'm getting for relief.
trussell, I’m praying that our prayers are answered and that you are restored to health. God is in charge, and nothing is too difficult or complicated for Him.
Prayers up! Hope you’ve had a meal by now. :)
I started out light yesterday... and tonight, I had meatballs with mashed taters and brown gravy. Not sure how it’s going to set as I JUST got done eating.
Thank you for the continued prayers. My other procedure/test is reset for the 10th, first thing in the morning.
The incision is feeling better. Not BEST yet, but better.
I have been to my pain management doc every 2 weeks AT LEAST...as they have me on the high strength pain meds and demands I come in that often in order to keep getting them. The problem is, it’s not enough...the pain is still bad. I am still not able to sleep through the night without waking up in bad pain...crying until the medicine takes part of the edge off. The other problem, he keeps giving me other meds, different meds and with going to see him and paying for the meds, it’s too dang expensive for me. There have been some freepers who have been a true blessing and helped me with these expenses, but the doctor doesn’t seem to understand, he’s run me out of that help and still wants to keep me coming in every other week! I cry because I know I need his help, but I can’t afford him...and I don’t know what to do so I can get the help for my pain. :(
My boy is such an awesome young man...he pushed me all the way to town and back home today so we could pick up the last of my meds that I could afford to get, I had to leave 3 scripts there as I didn’t have the funds to pay the deductible. I’m still waiting to see what is going to happen with the appeal for my disability, they were suppose to have the appeal filed last week...I haven’t got my letter yet so I can call the congressman to get his help with applying pressure to get a quicker response. I hate to keep asking, but please...say extra prayers for my financial situation...that they will get my disability approved soon so I don’t have to have these issues.
Also, my CT Milogram is on Tuesday this week. It’s been too many days of stressing, anxiety over this test. I hate having needles put into my spine, and especially when it’s in the neck! Please say prayers that this will finally explain the pain and problems I am having with my hands and left arm.
Thank you alll so much for the prayers and God Bless you
Thinking of you. Prayers up!
Thank you so much!! If you could please keep me in your thoughts for tomorrow’s procedure, I would truly appreciate it!
Yes. I will. ((hugs))
Prayers up for your test tomorrow morning!
Had the CT Milogram today. They injected dye in 2 spots so they could do the Cervical and Thoracic areas. I told the lady how bad my anxiety was so they actually did real good to put me all the way asleep, or at least in my opinion I was...The scan is done and I have the disk...I also have a headache, which they said was possible from having the needle in the spinal column. I have an appointment next week to find out the results of today’s scan...I’m praying for the best news possible...whatever God wants me to hear. Thank you again for the prayers. God Bless you all. T
Prayers abounding. Every day another step out of the way to good health.
As the Good Book sayeth, "This, too, shall pass."
Leni
I’m so thankful that something finally went smoothly for you! Hope it brings good news when they have analyzed the results!
BTTT
Prayers up.
Here’s prayerfully thinking you shall get some good news soon on the results of that medical procedure.
Fantastic news!! (I was so worried about this) Even a really bad headache is close to “getting off easy” by comparison. Myelograms HURT.
Still praying, T. Hang in there.
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