Skip to comments.The Story of Emmie-Rose (Update: Emmie-Rose passed last night)
Posted on 09/18/2006 7:45:45 PM PDT by KoRn
***This is a story about a baby born at 23 weeks***
Today Emmie-Roses Hospital has hit a major blow against us.
I believe some of the staff believe we are not providing the correct care for her and had us meet with the Ethics committee.
At most hospitals the Ethics committee is usually made up of staff, social workers, clergy, and parents of other children.
We had a room full of the staff, 1 surgeon, 2 social workers, and Stephanie and I. Lets just stack all the cards against us. After wasting 2 hours going over the issues, it is their Ethical recommendation to not continue life saving treatments to our baby! This includes vent support which she has been on since day one. Why dont you just turn the knife back and fourth after you stick it in our hearts! According to the committee we as parents of our child can not tell the U of M Doctors how to provide care to our child. They reserve the right to discontiune support when they feel like it.
They have not fed Emmie-Rose since 9/3/2006!
She had physical therapy this morning with NO problems. They moved her all over, pulled her legs in and out no changes in facial expressions, no changes in heart rate etc. SHE WAS FINE!
I spoke with some other doctors tonight at some different hospitals that seem more willing to be able to work with her condition but they want to wait until Monday to see how she is doing before agreeing to a transfer.
I probably can not get a restraining order until Monday as well to keep the U from pulling the plug on her without our consent and give her food.
(Excerpt) Read more at 23weeks.blogspot.com ...
I have a grown son that was born at 25 weeks, NINETEEN YEARS AGO. You tell them to save that baby or move her somewhere that will!!
Don't make me come out there!
Please FreepMail me if you want on or off my Pro-Life Ping List.
mom of a 27-weeker here...
yeah, what she said!
Heart-felt prayers for this baby and her parents.
These people are monsters.
You REALLY need to see this!
How old is yours now?? Our 6'3.5" son was always a success story, they don't know why he was born early, he just was. No glasses, no learning disabilities.
He had a couple of hard years, to begin with, but he's great now.
Now where do we send our complaints?
My brother was born at 25 weeks back in 1970, his first five years were tough, but then he just took off. He was a nationally ranked runner in high school and later went on to complete Ranger school.
The term U of M uses frequently is "Quality of Life', What EXACTLY IS Quality of Life?? Does anyone REALLY know?? Everyone's interpretation of statements are different and We disagree with their interpretation.
They have not fed Emmie-Rose since 9/3/2006! (as of 9/8/2006 at 56 days old)
New Video HERE!
That's what I want to know -- where to direct this so that LOTS or pressure is put on U of M to feed this baby.
This is horrific. Here's a recent blog entry -
September 13th ONE MORE BLOW!!!!
Well here's the deal... We have been on the phone all morning with Docs trying to get her transferred to another Hospital for a Second Opinion. Problem with that is the Docs at U of M are talking these other hospitals out of accepting Emmie-Rose for the Second Opinion that Rightfully We are allowed to receive.
We called Toledo back for a letter of acceptance and explaination to send to the Insurance Company for an appeal. In turn, The Doc tells Us that They have spoken to U of M and U of M has discouraged them from taking her due to another Ethics Committee meeting that We werent even told about or asked if We wanted to attend. The way the Docs at U of M are going We will NEVER get an Unbiased opinion. The Ethics Committee is now involved at Toledo even though they have NOT even assessed Emmie-Rose's condition firsthand and without an overturn decision by that Committee, the Doc that is willing to take her case is not allowed to do so.
They have now taken it upon Themselves to take away her TPN (nutrients She needs to grow, her "food") and her Blood Transfusions, Platelets and Lipids. She has had all of these things since birth until last Sunday when She had her surgery. They told Us She would die in two days, a week later She is still here and We asked them to give her her TPN, Blood and Platelets back and they did (yesterday). Yesterday they called a meeting to let Us know that "THEY" have "decided" amongst themselves that they are going to NOT feed her anymore or offer Her anymore Blood, Platelets or anything else that will help her to grow. So basically they want to starve her and let her blood run out so She can die. What does that sound like to you??? Torture if you ask ME!!
We just dont understand how a group of people who call themselves "doctors" can just "decide on a whim" that because this Child isnt "PERFECT" in their eyes that She isnt worth fighting for. They keep feeding Us the line "Well, do you know how hard it is going to be down the line/in the future". WHO CARES ABOUT TOMORROW, Lets work on today. They feel that Emmie-Rose is a "dead" issue and they have been just waiting for her to die. GUESS WHAT PEOPLE, LOOK WHO's STILL HERE!! NOW WHAT????????????? So their next course of action is to keep everything away from her that She has needed since birth and see if that makes her die. They let her blood get so low that that could have killed her. They are tired of dealing with Emmie-Rose because they see Her as "imperfect" and thats what they want to save is the ones that are going to make it "Long term". Who knows but the Lord who will make it the next 2 minutes let alone a yr from now. Obviously, U of M is trying to play "god" here and take it amongst themselves to kill Her at this point.
We need an Unbiased Second Opinion that We are entitled to as well as requested from the U of M team. We need someone out there to give Our Little Girl the chance. We want Her to live or die with Respect and Dignity that any Human being has the right to have. U of M is just completely giving up on a Living Human Being and that is NOT Right. We need to fight for Our Loved Ones and Stand Up for them when No One else will. Emmie-Rose is a fighter and until the Lord calls Her home, Mommy and Daddy are going to be fighting for Her every step of the way. There is a reason She is here and touching so many lives in the process. As long as She is going to fight, So are We.
Please Help Us!! IF Anyone has any contacts to help Us out with this situation, please either post or email Us. We need help from Everyone to Help Our Little Girl to get the Care She so deserves. This is a very time sensitive thing, We need to move quickly before U of M decides to take things into their own hands with more bad decisions.
Stephanie and Chris
Emmie-Rose's Mommy and Daddy
We need help finding a Doc to accept her and look at her without hearing one side only. If anyone knows a Neonatologist, a Ped Surgeon, Ped Doc with Nicu experience... Please pass Our story on. We need to move pretty fast.
Thanks for reading!
Please Continue the Prayers!!
You GROW GIRL!!!
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