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The Story of Emmie-Rose (Update: Emmie-Rose passed last night)
http://23weeks.blogspot.com/2006/09/sep-8-major-blow-to-patient-care.html ^ | Friday 9/8/2006 | Chris & Stephanie

Posted on 09/18/2006 7:45:45 PM PDT by KoRn

***This is a story about a baby born at 23 weeks***

Today Emmie-Rose’s Hospital has hit a major blow against us.

I believe some of the staff believe we are not providing the correct care for her and had us meet with the “Ethics” committee.

At most hospitals the Ethics committee is usually made up of staff, social workers, clergy, and parents of other children.

We had a room full of the staff, 1 surgeon, 2 social workers, and Stephanie and I. Let’s just stack all the cards against us. After wasting 2 hours going over the issues, it is their Ethical recommendation to not continue life saving treatments to our baby! This includes vent support which she has been on since day one. Why don’t you just turn the knife back and fourth after you stick it in our hearts! According to the committee we as parents of our child can not tell the U of M Doctors how to provide care to our child. They reserve the right to discontiune support when they feel like it.

They have not fed Emmie-Rose since 9/3/2006!

She had physical therapy this morning with NO problems. They moved her all over, pulled her legs in and out… no changes in facial expressions, no changes in heart rate etc. SHE WAS FINE!

I spoke with some other doctors tonight at some different hospitals that seem more willing to be able to work with her condition but they want to wait until Monday to see how she is doing before agreeing to a transfer.

I probably can not get a restraining order until Monday as well to keep the U from pulling the plug on her without our consent and give her food.

(Excerpt) Read more at 23weeks.blogspot.com ...


TOPICS: Chit/Chat; Health/Medicine; Miscellaneous; Science; Society
KEYWORDS: bioethics; cultureofdeath; dehydration; emmierose; euthanasia; futilecare; starvation; universityofmichigan; uselesseater
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My wife pointed this out to me, and it made my blood boil! An "Ethics Committee" at a hospital elected to allow a baby born at 23 weeks to die that could possibly live! This original blog post was from August 8th, and the issue is still ongoing between the family and the Hospital.
1 posted on 09/18/2006 7:45:46 PM PDT by KoRn
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To: KoRn

Bump


2 posted on 09/18/2006 8:28:00 PM PDT by Tuscaloosa Goldfinch (good fences make good neighbors!)
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To: Tuscaloosa Goldfinch

I have a grown son that was born at 25 weeks, NINETEEN YEARS AGO. You tell them to save that baby or move her somewhere that will!!


Don't make me come out there!
:(


3 posted on 09/18/2006 9:02:10 PM PDT by bluejean gal
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To: cpforlife.org

pro-life ping


4 posted on 09/19/2006 5:18:35 AM PDT by Tuscaloosa Goldfinch (good fences make good neighbors!)
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To: Coleus; nickcarraway; narses; Mr. Silverback; Canticle_of_Deborah; TenthAmendmentChampion; ...
Pro-Life PING

Please FreepMail me if you want on or off my Pro-Life Ping List.

5 posted on 09/19/2006 7:47:50 AM PDT by cpforlife.org (A Catholic Respect Life Curriculum is available at KnightsForLife.org)
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To: bluejean gal

mom of a 27-weeker here...

yeah, what she said!


6 posted on 09/19/2006 7:56:09 AM PDT by kimmie7 (Liberals embrace the sin......Christians embrace the sinner.)
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To: kimmie7

Heart-felt prayers for this baby and her parents.


BTTT


7 posted on 09/19/2006 8:10:30 AM PDT by woollyone (Preacher; "If there was more love in the world, there'd probably be a lot less dyin'")
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To: KoRn; 4lifeandliberty; AbsoluteGrace; afraidfortherepublic; Alamo-Girl; anniegetyourgun; applex; ...

Pro-Life/Pro-Baby ping!

Please FReepmail me if you would like to be added to, or removed from, the Pro-Life/Pro-Baby ping list...

8 posted on 09/19/2006 8:30:06 AM PDT by cgk (I don't see myself as a conservative. I see myself as a religious, right-wing, wacko extremist.)
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To: cgk; 69ConvertibleFirebird; Alexander Rubin; An American In Dairyland; Antoninus; Aquinasfan; ...
Moral Absolutes Ping!

Freepmail wagglebee or little jeremiah to subscribe or unsubscribe from the moral absolutes ping list.

FreeRepublic moral absolutes keyword search
[ Add keyword moral absolutes to flag FR articles to this ping list ]

These people are monsters.

9 posted on 09/19/2006 9:18:47 AM PDT by wagglebee ("We are ready for the greatest achievements in the history of freedom." -- President Bush, 1/20/05)
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To: 8mmMauser; T'wit; floriduh voter; BykrBayb

You REALLY need to see this!


10 posted on 09/19/2006 9:19:41 AM PDT by wagglebee ("We are ready for the greatest achievements in the history of freedom." -- President Bush, 1/20/05)
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To: kimmie7

How old is yours now?? Our 6'3.5" son was always a success story, they don't know why he was born early, he just was. No glasses, no learning disabilities.
He had a couple of hard years, to begin with, but he's great now.


11 posted on 09/19/2006 9:21:26 AM PDT by bluejean gal
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To: wagglebee
Prayers for Emmie-Rose.

Now where do we send our complaints?

12 posted on 09/19/2006 9:32:49 AM PDT by BykrBayb (Be careful what you ask for, and even more careful what you demand. )
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To: bluejean gal

My brother was born at 25 weeks back in 1970, his first five years were tough, but then he just took off. He was a nationally ranked runner in high school and later went on to complete Ranger school.


13 posted on 09/19/2006 9:37:42 AM PDT by wagglebee ("We are ready for the greatest achievements in the history of freedom." -- President Bush, 1/20/05)
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To: wagglebee
Pinged from Terri SEPTEMBER Dailies

8mm

14 posted on 09/19/2006 9:50:10 AM PDT by 8mmMauser (Jezu ufam Tobie...Jesus I trust in Thee)
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To: wagglebee
The Story of Emmie-Rose

-snip-

The term U of M uses frequently is "Quality of Life', What EXACTLY IS Quality of Life?? Does anyone REALLY know?? Everyone's interpretation of statements are different and We disagree with their interpretation.

-snip-

15 posted on 09/19/2006 9:58:04 AM PDT by BykrBayb (Be careful what you ask for, and even more careful what you demand. )
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To: KoRn

They have not fed Emmie-Rose since 9/3/2006! (as of 9/8/2006 at 56 days old)

New Video HERE!

16 posted on 09/19/2006 10:32:05 AM PDT by Ronaldus Magnus
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To: BykrBayb
Now where do we send our complaints?

That's what I want to know -- where to direct this so that LOTS or pressure is put on U of M to feed this baby.

17 posted on 09/19/2006 10:33:05 AM PDT by Tuscaloosa Goldfinch (good fences make good neighbors!)
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To: Ronaldus Magnus
Picture 1

Picture 2

New video from WXYZ Channel 7 News HERE!

18 posted on 09/19/2006 10:35:58 AM PDT by Ronaldus Magnus
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To: Tuscaloosa Goldfinch
Pediatric Ethics Committee

Contact Page

Additional contact information for the University of Michigan Health System

19 posted on 09/19/2006 10:48:15 AM PDT by BykrBayb (Be careful what you ask for, and even more careful what you demand. )
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To: KoRn

This is horrific. Here's a recent blog entry -

September 13th ONE MORE BLOW!!!!
Well here's the deal... We have been on the phone all morning with Docs trying to get her transferred to another Hospital for a Second Opinion. Problem with that is the Docs at U of M are talking these other hospitals out of accepting Emmie-Rose for the Second Opinion that Rightfully We are allowed to receive.

We called Toledo back for a letter of acceptance and explaination to send to the Insurance Company for an appeal. In turn, The Doc tells Us that They have spoken to U of M and U of M has discouraged them from taking her due to another Ethics Committee meeting that We werent even told about or asked if We wanted to attend. The way the Docs at U of M are going We will NEVER get an Unbiased opinion. The Ethics Committee is now involved at Toledo even though they have NOT even assessed Emmie-Rose's condition firsthand and without an overturn decision by that Committee, the Doc that is willing to take her case is not allowed to do so.

They have now taken it upon Themselves to take away her TPN (nutrients She needs to grow, her "food") and her Blood Transfusions, Platelets and Lipids. She has had all of these things since birth until last Sunday when She had her surgery. They told Us She would die in two days, a week later She is still here and We asked them to give her her TPN, Blood and Platelets back and they did (yesterday). Yesterday they called a meeting to let Us know that "THEY" have "decided" amongst themselves that they are going to NOT feed her anymore or offer Her anymore Blood, Platelets or anything else that will help her to grow. So basically they want to starve her and let her blood run out so She can die. What does that sound like to you??? Torture if you ask ME!!

We just dont understand how a group of people who call themselves "doctors" can just "decide on a whim" that because this Child isnt "PERFECT" in their eyes that She isnt worth fighting for. They keep feeding Us the line "Well, do you know how hard it is going to be down the line/in the future". WHO CARES ABOUT TOMORROW, Lets work on today. They feel that Emmie-Rose is a "dead" issue and they have been just waiting for her to die. GUESS WHAT PEOPLE, LOOK WHO's STILL HERE!! NOW WHAT????????????? So their next course of action is to keep everything away from her that She has needed since birth and see if that makes her die. They let her blood get so low that that could have killed her. They are tired of dealing with Emmie-Rose because they see Her as "imperfect" and thats what they want to save is the ones that are going to make it "Long term". Who knows but the Lord who will make it the next 2 minutes let alone a yr from now. Obviously, U of M is trying to play "god" here and take it amongst themselves to kill Her at this point.

We need an Unbiased Second Opinion that We are entitled to as well as requested from the U of M team. We need someone out there to give Our Little Girl the chance. We want Her to live or die with Respect and Dignity that any Human being has the right to have. U of M is just completely giving up on a Living Human Being and that is NOT Right. We need to fight for Our Loved Ones and Stand Up for them when No One else will. Emmie-Rose is a fighter and until the Lord calls Her home, Mommy and Daddy are going to be fighting for Her every step of the way. There is a reason She is here and touching so many lives in the process. As long as She is going to fight, So are We.

Please Help Us!! IF Anyone has any contacts to help Us out with this situation, please either post or email Us. We need help from Everyone to Help Our Little Girl to get the Care She so deserves. This is a very time sensitive thing, We need to move quickly before U of M decides to take things into their own hands with more bad decisions.

Love,
Stephanie and Chris
Emmie-Rose's Mommy and Daddy

We need help finding a Doc to accept her and look at her without hearing one side only. If anyone knows a Neonatologist, a Ped Surgeon, Ped Doc with Nicu experience... Please pass Our story on. We need to move pretty fast.

Thanks for reading!

Please Continue the Prayers!!

You GROW GIRL!!!


20 posted on 09/19/2006 10:57:04 AM PDT by agrace
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To: agrace

Almighty God,

Protect this precious life from those who lack the vision and
hope that you impart to us when we love you.

Cradle this tiny one, who has infinite value in your sight, in your
everlasting arms.

Lead these dear parents to the help they need to save their
baby. Bless them in their efforts, Lord. Give them wisdom and
guidance and lift them up.

We know you have a plan for precious Emmie-Rose.

Hear our prayers, oh Father God, and let this life instruct the lost
that you and you alone are the giver of life.

In the majestic name of Jesus,

AMEN!


21 posted on 09/19/2006 11:22:02 AM PDT by Lesforlife ("For you created my inmost being; you knit me together in my mother's womb . . ." Psalm 139:13)
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To: BykrBayb

Just filled out the complaint/commendation form.

Their hospital's reputation won't be helped by denying
care and food from a premie!


22 posted on 09/19/2006 11:31:20 AM PDT by Lesforlife ("For you created my inmost being; you knit me together in my mother's womb . . ." Psalm 139:13)
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To: Ronaldus Magnus

Links say access denied


23 posted on 09/19/2006 11:32:43 AM PDT by Lesforlife ("For you created my inmost being; you knit me together in my mother's womb . . ." Psalm 139:13)
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To: bluejean gal

A very precocious 7 years old, 4'3 and growing fast. A success story as well.


24 posted on 09/19/2006 11:48:14 AM PDT by kimmie7 (Liberals embrace the sin......Christians embrace the sinner.)
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To: agrace

Wonder if Vanderbilt would take this on. They're cutting edge with regard to preemies. That's where my son was born -- and saved.


25 posted on 09/19/2006 11:51:33 AM PDT by kimmie7 (Liberals embrace the sin......Christians embrace the sinner.)
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To: KoRn

This story has me so damn mad. It is as though the hospital, more than anything else, fears that this little girl will recover, thus proving them wrong.

I just don't get it! There she is, LIVING. How could they deny food and nutrition?? Perhaps she is destined to die soon, but who knows? They were wrong about her only having 2 days to live. And ultimately, every single one of us is born terminal - we are all going to die eventually.

If this were one of my children, this would already have escalated into a hostage situation. I would not hesitate to put a gun to the doctor's head and say "Feed her or you die." Especially at this point.


26 posted on 09/19/2006 11:53:51 AM PDT by shempy (EABOF)
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To: shempy
"This story has me so damn mad. It is as though the hospital, more than anything else, fears that this little girl will recover, thus proving them wrong.

Very true. Those people at the hospital should be in the business of saving lives, not ending them. This whole thing is unbelievable! I don't know how this is not in the news!

27 posted on 09/19/2006 12:30:54 PM PDT by KoRn
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To: KoRn

bump


28 posted on 09/19/2006 1:50:05 PM PDT by Tuscaloosa Goldfinch (good fences make good neighbors!)
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To: KoRn

bump


29 posted on 09/19/2006 1:50:22 PM PDT by Tuscaloosa Goldfinch (good fences make good neighbors!)
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To: Ronaldus Magnus
" They have not fed Emmie-Rose since 9/3/2006! (as of 9/8/2006 at 56 days old)"

I couldn't imagine being the parents in that situation. I believe it would be very.....very ugly!

30 posted on 09/19/2006 3:51:40 PM PDT by KoRn
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To: Lesforlife
Sorry about that, the photo links worked when I posted them. They can be found at the original site here: Sep 7 - PICS!. The video link to the WXYZ Channel 7 News story should still work.
31 posted on 09/19/2006 7:40:34 PM PDT by Ronaldus Magnus
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To: kimmie7

\o/

Great news.


32 posted on 09/19/2006 7:57:32 PM PDT by bluejean gal
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To: wagglebee

Back in the 70s??? Now that was a miracle.
Congratulations for his sake


33 posted on 09/19/2006 7:58:54 PM PDT by bluejean gal
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To: KoRn; 2ndMostConservativeBrdMember; afraidfortherepublic; Alas; al_c; american colleen; annalex; ...


34 posted on 09/19/2006 10:26:34 PM PDT by Coleus (Roe v. Wade and Endangered Species Act both passed in 1973, Murder Babies/save trees, geese, algae)
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To: KoRn

Get her to a Catholic Hospital ASAP.


35 posted on 09/19/2006 10:28:01 PM PDT by Coleus (Roe v. Wade and Endangered Species Act both passed in 1973, Murder Babies/save trees, geese, algae)
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To: KoRn; 4lifeandliberty; AbsoluteGrace; afraidfortherepublic; Alamo-Girl; anniegetyourgun; applex; ...

PAINFUL UPDATE: Please pray for Emmie-Rose's parents and siblings...

Sept 19th A Very Sad Day!!!

To All of Our Loving, Caring Readers out there, Ms. Emmie-Rose fought Her last Battle tonight. Our Baby Girl passed away tonight around 9:45 p.m. She went fighting all the way. She is a True Hero in Our Eyes!! She has touched alot of lives in the short time She has been with Us. We are so proud of Her and all the things She has done in Her 66 Days with Us.

We Love You Sweet Princess!!! Forever and Ever, NO MATTER WHAT!! We know You are in Heaven now looking down on Us. We are so happy to know that You arent hurting anymore. Please know that Mommy and Daddy adored You and Loved You and still Love You now.


Further Information on Funeral arrangements will be posted at a later date.

Thanks again to All that Care!

Love,
Stephanie and Chris and Miss Emmie-Rose May You Rest In Peace Sweet Princess


(Prayer posted by Emmie-Rose's mommy)

My Prayer to You Miss Emmie-Rose

Lord, She is Yours Now
Please take care of Her
We love Her So Very Much
But know You Love Her too.

We wish We had More time with Her
But We understand You have other Plans
We wont question You Dear Lord
Please Just keep Her in Your Hands!!

Watch over Her and Hold Her tight
As She now has seen the Light
Help Her understand the Way
Until We meet again one Day.

Love, Mommy

May You Rest in Peace Sweet Princess
September 19, 2006
9:47 p.m

36 posted on 09/20/2006 9:53:51 AM PDT by cgk (I don't see myself as a conservative. I see myself as a religious, right-wing, wacko extremist.)
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To: cgk

Terrible!


37 posted on 09/20/2006 9:55:06 AM PDT by KoRn
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To: KoRn

I am heart-broken for her poor parents. This just tears at my soul.


38 posted on 09/20/2006 9:56:42 AM PDT by cgk (I don't see myself as a conservative. I see myself as a religious, right-wing, wacko extremist.)
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To: cgk
"I am heart-broken for her poor parents. This just tears at my soul."

Same here. I couldn't imagine how the parents must feel.

39 posted on 09/20/2006 9:59:15 AM PDT by KoRn
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To: All
The picture isn't working on direct link, so I uploaded it elsewhere. This is Emmie-Rose, picture from Sept 7th.


40 posted on 09/20/2006 9:59:21 AM PDT by cgk (I don't see myself as a conservative. I see myself as a religious, right-wing, wacko extremist.)
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To: cgk

This is so sad. Where I work, we know we can't save every baby, but we don't give up so easily, especially if the parents want everything done. That baby looks alert with good color; not edematous, not in pain.

Why boter having a NICU if you're not dedicated to saving the lives of babies?


41 posted on 09/20/2006 10:23:04 AM PDT by DLfromthedesert (Texas Cowboy...graduated to Glory)
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To: DLfromthedesert

That should be "bother"


42 posted on 09/20/2006 10:23:38 AM PDT by DLfromthedesert (Texas Cowboy...graduated to Glory)
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To: DLfromthedesert

I'm having a hard time understanding much of it. Reading through their website, her parents had to go through several "Ethics" meetings (some they weren't even told about), and also tried to have Emmie-Rose moved to other hospitals for a "second opinion", only to have the doctors that were treating her talk the potential docs out of even giving a 2nd opinion! Sad all around.


43 posted on 09/20/2006 10:48:54 AM PDT by cgk (I don't see myself as a conservative. I see myself as a religious, right-wing, wacko extremist.)
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To: cgk

Prayers for her family.


44 posted on 09/20/2006 11:08:25 AM PDT by Jaded (does it really need a sarcasm tag?)
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To: KoRn

Prayers for the family of Emmie Rose.


45 posted on 09/20/2006 11:34:46 AM PDT by Salvation (With God all things are possible.)
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To: cgk

Prayers up.


46 posted on 09/20/2006 11:38:40 AM PDT by stainlessbanner
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To: cgk

Praying. God bless.


47 posted on 09/20/2006 11:50:36 AM PDT by Sue Perkick (The true gospel is a call to self-denial. It is not a call to self-fulfillment..John MacArthur)
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To: KoRn

A CHILD LOANED

"I'll lend for a little time a child of mine." He said."For you to love the while she lives, and mourn when she is dead.

It may be now or six or seven years, or twenty two or three,But will you, till I call her back, take care of her for me?

She'll bring her charm to gladden you, and should his stay be brief,you'll have her lovely memories as solace in your grief.

I cannot promise she will stay, since all from earth return,but there are lessons taught down there I want this child to learn.I've looked the wide world over in search of teachers true.And from the throngs that crowd life's lanes, I have selected you.

""Now will you give her all your love nor think the labor vain,nor hate me when I come to call, to take her back again?"

I fancied that I heard them say, "Dear Lord, Thy will be done,For all the joy thy child shall bring, the risk of grief we'll run.

We'll shelter her with tenderness, we'll love her while we may;And for the happiness we've known will ever grateful stay.

But should your angels call for her much sooner than we planned,We'll brave the bitter grief that comes, and try to understand!"

Author Unknown


48 posted on 09/20/2006 12:27:59 PM PDT by franky (Pray for the souls of the faithful departed.)
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To: cgk

This breaks my heart. Seeing the picture brings back a lot of memories of my little guy in the NICU.

Prayers for the family.


49 posted on 09/20/2006 2:00:01 PM PDT by Evie Munchkin
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To: cgk; 69ConvertibleFirebird; Alexander Rubin; An American In Dairyland; Antoninus; Aquinasfan; ...
Moral Absolutes Ping!

Freepmail wagglebee or little jeremiah to subscribe or unsubscribe from the moral absolutes ping list.

FreeRepublic moral absolutes keyword search
[ Add keyword moral absolutes to flag FR articles to this ping list ]

A very sad prayer request ping.

50 posted on 09/20/2006 6:12:26 PM PDT by wagglebee ("We are ready for the greatest achievements in the history of freedom." -- President Bush, 1/20/05)
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