Posted on 08/20/2022 4:48:03 PM PDT by DAC21
So very sorry
Oops, forgot to mention these forums are like gold to family caregivers because they can find practical advice on the day-to-day hands-on care of the patient from those who have already done that and learned much. Your friend’s wife may really appreciate that aspect.
If the poor guy is a veteran, make sure that he stays away from VA hospitals and doctors...
Most areas have reasonable geographic access to excellent medical institutions that are excellent at treating cancer...
Just make sure they are recognized as such nationally...
Facilities like Mayo, John Hopkins, Anderson....etc...
Prayers up for your friend...
I’ve been down your road with a couple of best friends...
Great advice!
call anderson or penn.
Even pancreatic cancer is not hopeless.
One of my female relatives was diagnosed with stage 2 pancreatic cancer in 2013.
She had surgery and chemo.
It was rough, to say the least. She suffered several life threatening bleeds and spent weeks in the hospital.
Eight and 1/2 years later she is alive and doing well.
I’ve seen miracles among friends who went to MDAnderson, but like anything else, it’s best to research what treatment areas they are strong in. My two friends had bladder cancer (family history) and ovarian cancer, and were both helped to beat it and live a long time afterward.
“is it metastatic?”
It is inoperable, per the first consultation. So reading up on this type cancer it appears it is. But I have not heard the specific details from my friend yet.
prayers up
The gallbladder is intimately tied with the liver and pancreas:
https://medicalxpress.com/news/2021-08-embryonic-pancreas-gallbladder-liver-previously.html
Nicotinamide Riboside eliminated cancer tumors in liver and pancreatic cancer subjects—both in mice and humans:
https://medicalxpress.com/news/2014-11-team-derivative-vitamin-b3-liver.html
We gave a close relative with a 4 centimeter tumor, shown on an X-ray, 450 mg of nicotinamide riboside (with a few other cofactors), to take it, and normal vitamins and minerals he never had, before his surgery. When they took another image of the tumor the day before his surgery, the tumor was completely gone. The doctors could not explain it, but my relative told them what he did. The surgery was canceled.
Many cancers have dysfunctional mitochondria powering their cells. Supplements helping cause mitophagy can help eliminate these defective mitochondria. GlyNAC and Urolithin A have both been shown to encourage mitophagy. These could be an adjunct approach.
It sounds like your friend has no medical options, so consider these supplements as an alternative.
Both my wife and I take 300 mg of liposomal nicotinamide riboside a day, 3,600 mg of GlyNAC (1,800 mg of glycine and 1,800 mg of NAC) a day, and 1,000 mg of Urolithin A a day. We have had no issues for the nearly three months we've been on this regimen, and my wife finally got rid of neck disc issues she's had for 15 years, just in the last two weeks. She has had chronic neck and shoulder pain she was told would always be with her, and it's now gone.
Of course, this is anecdotal for the experiences I tell you, so it needs to be take as such, but for someone with limited options and with people taking these doses, it may be worth a try.
Do make sure he has a good multi-vitamin and multi-mineral, too.
I hope he is able to improve his prognosis.
One follow up to my prior post.
My relative’s tumor was on the outside of his liver.
300 mg of liposomal nicotinamide riboside a day, 3,600 mg of GlyNAC (1,800 mg of glycine and 1,800 mg of NAC) a day, and 1,000 mg of Urolithin A a day. We have had no issues for the nearly three months we’ve been on this regimen, and my wife finally got rid of neck disc issues she’s had for 15 years, just in the last two weeks. She has had chronic neck and shoulder pain she was told would always be with her, and it’s now gone.
__________________
I don’t mind doing research, but it’s been one of those days, so do you have a quick precis of the method of action on these supplements on connective tissue?
I highly recommend mayo Scottsdale. Asap.
Bkmk
“Some gallbladder tumors have specific mutations in their DNA that make them more treatable with certain immunotherapy drugs. Two types of immunotherapy, Keytruda® (pembrolizumab) and Opdivo® (nivolumab), are approved to treat gallbladder tumors with a certain genetic marker called MSI.”
Also:
Among various therapies, dendritic cell therapy is growing at rapid pace due to its acceptable rationale. It has been utilized in treating successfully resected stage III (T2, N1, M0) gallbladder cancer in one of our patients. A 48 years old lady treated with this therapy is free of metastasis with ten doses of autologous dendritic cell vaccine constructed by utilizing resected tumor lysate antigen. She has received ten doses of therapy in 14 months of her treatment. This therapy has proven to be safe and without apparent side effects. The positive clinical response obtained supports that autologous dendritic cell-based immunotherapy is a promising therapeutic approach for refractory gallbladder cancers.
From
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1559800/
All this stuff is moving very fast. Never assume the guy you are talking to knows everything about what is or is not available. Always keep hunting.
Gives his full story. You can find other stories by simply searching the web for fenbendazole+cancer.
This thread was just published. Maybe something for your friend.
https://freerepublic.com/focus/f-chat/4087246/posts
Still only animal experiments, but human studies will probably start soon. Something his doctors should keep their eyes open for.
+1
SoCal
Loma Linda University has what is supposed to be a very good cancer center
https://lluh.org/cancer-center
There’s also UC Irvine’s center in Orange:
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