Posted on 08/20/2022 4:48:03 PM PDT by DAC21
My best buddy of 47 years was just diagnosed with gallbladder cancer. (63 years old) His initial consultation was that it was inoperable. He has a second opinion in about two weeks. I have not talked to him other than a few texts yesterday when he informed me. I will see him in the next day or two. My own research indicates this is very bad, inoperable seems to indicate it has spread to the liver. Seems it's kind of like pancreatic cancer, it's just the metastasis comes via the Gallbladder.
Apparently, this is relatively a rare cancer, 85,000 die a year worldwide, which doesn't sound it, but actually is pretty low.
I'm hoping someone may have advice specific to this cancer, any cutting edge treatments? Mayo, MD Anderson? Anything? Thank you
www.mycancerstoryrocks.com
Try IP6. It’s harmless, and has a reputation for stopping cancer from spreading.
It does sound bad - I have a friend who’s a survivor of gallbladder cancer, which usually doesn’t happen but hers was found early b/c of GB surgery.
At any rate, her care was at M.D. Anderson and she was very happy with them.
The chemo left her with pretty bad neuropathy in her feet.
I did, than you!
I’d do this in a heartbeat.
I understand they have a facebook group by the same name.
Where does your friend live?
Very sorry to hear about your best friend. I’m 83 and living on borrowed time. I’d do it all again but me and the good Lord has a date. I prefer to call it my great re-set.
GOD BLESS
Prayers for your friend.
“Where does your friend live?”
So Cal. I understand Anderson now has treatment in San Diego via Scripps? Mayo in Scottsdale AZ.
My advice FWIW is for your friend to get the best doctors he can find, multiple opinions etc. That may be what your friend is already doing. I hope so.
Seek professional help for serious medical conditions rather than advice from anonymous posters at a chat site. I wish him well.
I’ve been living with a mass on my liver that is cancerous for 5 years. I decided not to have the radio embolization. I have an MRI every 6 months and so far no growth. It even shrunk 1 time. I know it sounds crazy but the procedure is invasive. I hope your friend makes it. Just pray. It can’t hurt.
You’re awesome.
I’m so very sorry. What a heartbreaking diagnodis! This drug claims to be helpful in cases such as your friend’s, but ONLY provided he has the Mutant IDH1 variety (which he may not):
“NCCN Guidelines® recommend ivosidenib (TIBSOVO) as a subsequent line treatment option for unresectable or metastatic cholangiocarcinoma with an IDH1 mutation following disease progression.”
Lancet study:
https://www.sciencedirect.com/science/article/abs/pii/S1470204520301571
Here’s my experience. The people who know or work with this person will stop seeing or communicating with him. It’s as if they feel death is contagious. Make a regular contact with him, like every Thursday. He’ll have something to always look forward to. Phone if you’re not in traveling distance, in person if you are. Tell his wife or care giver when you’re going to visit so they can go do stuff, like visit a barber or do the grocery shopping or just get some time off, as caring for someone is exhausting. Just say hello and have some non-death or illness conversation prepared if he doesn’t want to talk. (TV shows, books, the latest news, etc.) Otherwise, just listen to him talk and try to understand what he’s feeling.
“”Apparently, this is relatively a rare cancer, 85,000 die a year worldwide, which doesn’t sound it, but actually is pretty low.””
Can’t say I’ve ever heard of it but if it has something to do with the pancreas, it could be bad. Hope he and you can come up with some help...It’s probably not unknown to the companies that you mentioned.
“Here’s my experience. The people who know or work with this person will stop seeing or communicating with him. It’s as if they feel death is contagious. Make a regular contact with him, like every Thursday. He’ll have something to always look forward to. Phone if you’re not in traveling distance, in person if you are. Tell his wife or care giver when you’re going to visit so they can go do stuff, like visit a barber or do the grocery shopping or just get some time off, as caring for someone is exhausting. Just say hello and have some non-death or illness conversation prepared if he doesn’t want to talk. (TV shows, books, the latest news, etc.) Otherwise, just listen to him talk and try to understand what he’s feeling”
Thank you... excuse me, I have something in my eye that requires a Kleenex.
Best of luck to your friend.
“Can’t say I’ve ever heard of it but if it has something to do with the pancreas, it could be bad. Hope he and you can come up with some help...It’s probably not unknown to the companies that you mentioned”
No nothing to do with the Pancreas although at some point the spread could. It’s the spread to the Liver, like Pancreatic cancer, that usually is devastating.
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