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URGENT PRAYERS NEEDED - DAUGHTER ON RESPIRATOR, NOW HAS MRSA (Update at #263)
Me | 07/01/2009 | Concerned

Posted on 07/01/2009 6:45:07 PM PDT by Concerned

URGENT PRAYERS NEEDED - DAUGHTER ON RESPIRATOR, NOW HAS MRSA.

My daughter, Stephanie, is on a respirator and nasal feeding tube in the ICU at our local hospital. She was admitted to the hospital on 06/07/2009, after having a seizure that lasted over an hour. She had several shorter ones back-to-back after admission. We were told today that she now has MRSA.

I have written about her before. She is a severely mentally and physically disabled 24 year old, who does not walk, talk, or feed herself. She wears diapers and has a very rare type of dwarfism, so she is only 36 inches tall. She will be 25 years old on 07/27/2009, assuming she lives through this ordeal.

When she was about 9 months old, she had to be trached and on a respirator, with a feeding tube, for a little over 3 years, because her rib cage was significantly deformed and not large enough to allow her lungs to fully expand.

The VERY progressive Doctors we had thought that if she could be trached and ventilated on a respirator, the positive pressure from the respirator pushing her lungs out to hit her rib cage would stimulate her rib cage to grow over three years---and it DID, significantly!

We had an ICU in our home, with round-the-clock nursing. Eventually, she no longer needed either the Respirator or feeding tube.

Because of her respirator-enlarged rib cage, from about age five until probably age 20 or so, she was basically like most kids as far as getting sick was concerned. No major medical problems during that time.

Then suddenly, she started having seizures, especially after we got her out of the tub and she was still a little wet. For some reason, her ability to deal with temperature regulation went haywire and she began having febrile (i.e. sudden, major temperature-drop) seizures. She also started having them with strobe light effects, e.g. when a fan was beneath lights and the fan "cut through" the path of light.

Since we had taken Stephanie on many trips during her lifetime, my husband and I decided to take our younger daughter on a cruise to Alaska via Vancouver, leaving Stephanie in the hands of the agency which regularly helps us care for her at home.

We had just gotten off the ship and were back in Canada when we got the call about Stephanie going to the hospital. We got back asap.

We just okayed the Doctor to have her trached again and to have a feeding tube put in again. The trach may be temporary, but she aspirates when she gets anything by mouth. And now, she has to also fight off MRSA.

PLEASE PRAY FOR HER HEALING AND RECOVERY and to guide the Doctors' hands and for us to make the right decisions.

Thanks!!!


TOPICS: Announcements; Culture/Society; News/Current Events
KEYWORDS: mrsa; prayer; prayerrequest; respirator; urgent
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1 posted on 07/01/2009 6:45:08 PM PDT by Concerned
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To: Concerned

Prayers up.

God keep you all and bring her healing.

In Jesus’ name.

Amen


2 posted on 07/01/2009 6:46:28 PM PDT by combat_boots (The Lion of Judah cometh. Hallelujah. Gloria Patri, Fili et Spiritus Sancti.)
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To: Concerned

My prayers...


3 posted on 07/01/2009 6:47:07 PM PDT by Repeal The 17th
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To: Concerned

Prayers sent.


4 posted on 07/01/2009 6:47:07 PM PDT by rfp1234
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To: Concerned

Praying for Stephanie and your family!


5 posted on 07/01/2009 6:47:33 PM PDT by Evie Munchkin (Sarah in 2012!)
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To: Concerned

Prayers to your family.


6 posted on 07/01/2009 6:47:37 PM PDT by stevecmd
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To: Concerned

Prayers said!


7 posted on 07/01/2009 6:47:46 PM PDT by red irish (Gods Children in the womb are to be loved too!)
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To: Concerned; Texas Termite; manna; Okies love Dubya 2; Fawnn; Harmless Teddy Bear; Kathy in Alaska; ..

Oh noooo.........MANY PRAYERS for your daughter, her medical team...and YOU!!!

I’m combining Logan’s AND trussell’s ping lists...please forgive me for any double pings...


8 posted on 07/01/2009 6:47:58 PM PDT by Bradís Gramma (BG x 2)
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To: Concerned

Dear Lord,

I am lifting Stephanie up to You in prayer tonight.
Stephanie has many medical challenges including
MRSA.

Please guide the doctors, nurses, caregivers and other
medical staff as they tend to Stephanie.

Comfort this family God.

Your will be done.

In Jesus’ Holy Name.
Amen.


9 posted on 07/01/2009 6:48:28 PM PDT by Cindy
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To: Concerned

Prayers for your daughter and your family, you are very brave!


10 posted on 07/01/2009 6:48:44 PM PDT by Rome2000 (Peace is not an option)
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To: Pegita

Prayer ping.


11 posted on 07/01/2009 6:48:56 PM PDT by Cindy
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To: Concerned; Alamo-Girl; AliVeritas; Allegra; appleseed; azishot; B Knotts; BIGLOOK; blackie; ...

We’ll be praying.


12 posted on 07/01/2009 6:49:05 PM PDT by knittnmom (O Administration: there's just no there, there)
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To: Concerned

praying for your daughter and your family. May the LORD embrace you and strengthen you during this time of great need.


13 posted on 07/01/2009 6:49:22 PM PDT by JesusBmyGod (Baruch HaBa B'Shem Adonai)
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To: Concerned

Heavenly Father, I lift up Stephanie in prayer, and ask that you grant her special favor, for healing, and for the skilled guidance of her physicians. I thank you for granting this family another opportunity to see your grace and omnipotence displayed.
In Jesus Name,
Amen


14 posted on 07/01/2009 6:50:31 PM PDT by grandpa jones (obama must be exhausted, having to tote that giant brain of his around all the time.,.)
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To: Concerned

Prayers up—


15 posted on 07/01/2009 6:50:31 PM PDT by Mamzelle
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To: Concerned

Prayers for your daughter and your family.


16 posted on 07/01/2009 6:50:34 PM PDT by Cicero (Marcus Tullius)
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To: Concerned

Prayers for Stephanie — and for you.


17 posted on 07/01/2009 6:50:57 PM PDT by Exit148 (a)
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To: Concerned

God Bless your child and your family. I will keep you in my prayers...


18 posted on 07/01/2009 6:51:08 PM PDT by rlmorel ("The Road to Serfdom" by F.A.Hayek - Read it...today.)
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To: Concerned

I admire you for standing by and caring for your daughter. Prayers for you and your daughter.


19 posted on 07/01/2009 6:51:45 PM PDT by umgud (Look to gov't to solve your everday problems and they'll control your everday life.)
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To: Concerned

Will be praying for sweet Stephanie.


20 posted on 07/01/2009 6:51:53 PM PDT by Miss Didi ( "After all...tomorrow is another day." Scarlett O'Hara, Gone with the Wind)
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To: Concerned

Love and prayers to you all!


21 posted on 07/01/2009 6:51:58 PM PDT by fullchroma (I want my country back.)
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To: Concerned

Prayers for Stephanie and family. God bless.


22 posted on 07/01/2009 6:52:04 PM PDT by HoosierHawk
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To: Concerned

“...leaving Stephanie in the hands of the agency
which regularly helps us care for her...”
-
Can you provide more info on this?
Your ‘about’ page does not say much...
I have a niece that is 30 years old
with the mind of a 3 year old.
It is heartbreaking.
My prayers for you and for your daughter.


23 posted on 07/01/2009 6:52:42 PM PDT by Repeal The 17th
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To: Concerned

Prayers for both of you.


24 posted on 07/01/2009 6:52:47 PM PDT by ElayneJ
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To: Concerned

Dad had MRSA last fall with his GJ tube. There are some new medicines out there...Make sure she gets them....He was better in just a couple of days. That being said it was the prayers that pulled him through....Prayers going up for all of you and Stephanie.


25 posted on 07/01/2009 6:53:30 PM PDT by hoosiermama (Hey hey! Ho ho! Where's your Birth Certificate/ We've a right to know!)
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To: Concerned

Prayers sent for healing for her and comfort for you all. Peace.

Missy


26 posted on 07/01/2009 6:53:52 PM PDT by missycocopuffs
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To: Concerned

Praying for your precious girl & your family. May the God of all comfort comfort you in your tribulation and grant your peace.


27 posted on 07/01/2009 6:54:04 PM PDT by ironmaidenPR2717 ("Those who cried 'apease, apease' are hanged by those they sought to please...")
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To: Concerned

Prayers made for her and you.


28 posted on 07/01/2009 6:54:04 PM PDT by rawhide
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To: Concerned

4 little ones in Maryland will be praying for her tonight!


29 posted on 07/01/2009 6:54:12 PM PDT by icwhatudo (For every clinic bombed or burned, 17 to 18 churches are burned down. MSM? MSM?)
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To: Concerned

Sorry to hear this.

Prayers being sent.

Godspeed and may all of you find peace through faith.


30 posted on 07/01/2009 6:54:21 PM PDT by Ghost of Philip Marlowe (The most dangerous fascists are those with a warm smile and soothing voice.)
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To: Concerned

I join in prayer.

Matt 18:20


31 posted on 07/01/2009 6:54:24 PM PDT by glock rocks (... just tryin to make do...)
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To: Concerned

Prayers on the way.


32 posted on 07/01/2009 6:54:30 PM PDT by Jim Robinson (Follow me on Twitter: http://twitter.com/jimrobfr)
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To: Concerned

Prayers up.


33 posted on 07/01/2009 6:55:02 PM PDT by originalbuckeye
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To: Concerned

Praying for your precious girl & your family. May the God of all comfort comfort you in your tribulation and grant your peace.


34 posted on 07/01/2009 6:55:31 PM PDT by ironmaidenPR2717 ("Those who cried 'apease, apease' are hanged by those they sought to please...")
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To: Concerned

May God please help your family tonight. My prayers are with you and yours.


35 posted on 07/01/2009 6:55:39 PM PDT by lovesdogs (I will die on my feet if it is God's will. But I will not live on my knees for any man.)
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To: Concerned

I believe when FReepers pray for you, prayers are answered.

Keeping your beloved daughter in my prayers.

/FF


36 posted on 07/01/2009 6:55:51 PM PDT by Fudd Fan (Bono, Castle, Kirk, LoBiondo, Lance, McHugh, Reichert, Smith ALL RINO SELLOUTS)
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To: Concerned

Oh no! Prayers sent for your dear daughter!

On the intercession of St. Padre Pio, may Our Lord Jesus grant healing to your daughter, and comfort you and give you peace.


37 posted on 07/01/2009 6:56:11 PM PDT by sneakers ( NO AMERICAN BOWS TO ROYALTY - From president to ditch digger - NO AMERICAN BOWS! "Jim")
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To: Concerned

Praying for Stephanie.


38 posted on 07/01/2009 6:56:38 PM PDT by SamiGirl
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To: Concerned

Concerned,

Prayers for Stephanie and all of your family. May God give you all strength and comfort as you face yet another health crisis together. You are a special, special mom. God bless you.

TXBlair


39 posted on 07/01/2009 6:56:52 PM PDT by TXBlair
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To: Concerned

Wow. God be with you all.


40 posted on 07/01/2009 6:57:18 PM PDT by stevio (Crunchy Con - God, guns, guts, and organically grown crunchy nuts.)
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To: Concerned

God bless you. Stephanie, along with your family, will be in my prayers and thoughts.


41 posted on 07/01/2009 6:57:34 PM PDT by lara
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To: Concerned
If you are in Vancouver and need help, Al Arsenault at The Odd Squad is a retired VPD constable and knows EVERYBODY.
42 posted on 07/01/2009 6:57:39 PM PDT by MindBender26 (The Hellfire Missile is one of the wonderful ways God shows us he loves American Soldiers & Marines)
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To: Concerned

Prayers.


43 posted on 07/01/2009 6:57:56 PM PDT by patton (Obama has replaced "Res Publica" with "Quod licet Jovi non licet bovi.")
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To: Concerned

Prayers for your daughter’s recovery and comfort, and prayers for strength and peace in your family.


44 posted on 07/01/2009 6:58:14 PM PDT by Judith Anne (Drill here! Drill NOW! Defund the EPA!)
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To: Concerned

Your whole family is in my prayers. You have been great parents.


45 posted on 07/01/2009 6:58:32 PM PDT by Conservativegreatgrandma (I)
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To: Concerned
Prayers on the way that Stephanie be healed quickly and completely.


46 posted on 07/01/2009 6:58:42 PM PDT by BlessedBeGod
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To: Concerned

Dear Concerned,

I to have a mentally handicapped child and I know what you are going through. Please know that your daughter and your whole family are in my prayers. My God bless this special person and her family.


47 posted on 07/01/2009 6:59:19 PM PDT by longhorn too
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To: Concerned

Tons of Prayers!!!!! The post was very touching. Keep the faith.


48 posted on 07/01/2009 6:59:50 PM PDT by Orange1998
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To: Concerned

Will be praying for a full recovery.
For your family too.


49 posted on 07/01/2009 6:59:56 PM PDT by cruise_missile
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To: Concerned

Prayers, love, light and healing for Stephanie. May the hands of God guide those in charge of her health....


50 posted on 07/01/2009 6:59:58 PM PDT by BossLady ("WE are the origin of all coming evil" ~~ Carl Jung~~)
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