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Please address your prayers to Concerned;
Posted on 07/01/2009 6:45:07 PM PDT by Concerned
URGENT PRAYERS NEEDED - DAUGHTER ON RESPIRATOR, NOW HAS MRSA.
My daughter, Stephanie, is on a respirator and nasal feeding tube in the ICU at our local hospital. She was admitted to the hospital on 06/07/2009, after having a seizure that lasted over an hour. She had several shorter ones back-to-back after admission. We were told today that she now has MRSA.
I have written about her before. She is a severely mentally and physically disabled 24 year old, who does not walk, talk, or feed herself. She wears diapers and has a very rare type of dwarfism, so she is only 36 inches tall. She will be 25 years old on 07/27/2009, assuming she lives through this ordeal.
When she was about 9 months old, she had to be trached and on a respirator, with a feeding tube, for a little over 3 years, because her rib cage was significantly deformed and not large enough to allow her lungs to fully expand.
The VERY progressive Doctors we had thought that if she could be trached and ventilated on a respirator, the positive pressure from the respirator pushing her lungs out to hit her rib cage would stimulate her rib cage to grow over three years---and it DID, significantly!
We had an ICU in our home, with round-the-clock nursing. Eventually, she no longer needed either the Respirator or feeding tube.
Because of her respirator-enlarged rib cage, from about age five until probably age 20 or so, she was basically like most kids as far as getting sick was concerned. No major medical problems during that time.
Then suddenly, she started having seizures, especially after we got her out of the tub and she was still a little wet. For some reason, her ability to deal with temperature regulation went haywire and she began having febrile (i.e. sudden, major temperature-drop) seizures. She also started having them with strobe light effects, e.g. when a fan was beneath lights and the fan "cut through" the path of light.
Since we had taken Stephanie on many trips during her lifetime, my husband and I decided to take our younger daughter on a cruise to Alaska via Vancouver, leaving Stephanie in the hands of the agency which regularly helps us care for her at home.
We had just gotten off the ship and were back in Canada when we got the call about Stephanie going to the hospital. We got back asap.
We just okayed the Doctor to have her trached again and to have a feeding tube put in again. The trach may be temporary, but she aspirates when she gets anything by mouth. And now, she has to also fight off MRSA.
PLEASE PRAY FOR HER HEALING AND RECOVERY and to guide the Doctors' hands and for us to make the right decisions.
Thanks!!!
Prayers up big time! It seems that she should be at the front of the line today.
Prayers for your daughter and for your family.
Prayers for you and your daughter Stephanie. I pray all turns out well for you and your family.
Prayer thread ping urgently needed!
Prayers up!
As for the MRSA. Research on Manuka Honey has shown that it zaps MRSA when all else fails. You can order it on line from Manuka Honey USA. It cured my acid reflux also.
Prayer bump.
Prayers for this loving family.
Joining in prayer for Stephanie and her loved ones.
Praying for healing for your daughter, and for peace, strength and grace for you, in Jesus’ Name.
May God bless and protect your dear daughter and entire family.
I will remember Stephanie, yourself and family, in my prayers. May God Bless you all even during this tough situation.
Prayrers being said for Stephanie, for her family and for her medical providers.
My hopes and prayers are with your daughter.
My prayers are with you. I understand the seizure thing.
Also have a disabled granson.
Peace to you and yours in this time of trial.
Prayers for Stephanie. We also have a mentally and physically handicapped child, now 26. Although his problems are much less severe than your daughters, we’ve gone through many medical emergencies and it’s really tough. Our hearts go out to you and your child.
Prayers being sent to heaven right now on your precious daughter’s behalf.
Stephanie and all your family will be in my family’s prayers.
She (and you) is in my thoughts and prayers!
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