Good luck honey. Ask Alfie Evans how that worked out.
After what happened to Alfie, I doubt Theresa May will lift a finger.
We must let doctors make these decisions. It is what the UK and EU government say along with many in the Catholic and Anglican Church. Also for some reason traveling to America would put their lives in danger and that would be a violation of their human rights.
Well, see Alfie was a white boy.
These are white girls. May will probably make sure they get the drug.
The wholesale acquisition cost for the cystic fibrosis (CF) treatment now clocks in at $20,919 for four, 28-tablet boxes, according to an investor note from Cowen & Co. analyst Phil Nadeau. Patients ages 12 and up are supposed to take Orkambi twice daily, giving it an annual bill of $251,000 before rebates.
We have calculated that your expected future contributions to the Glorious Socialist State will not compensate for the expenditures you propose. Your request for medication is therefore rejected.
You are hereby required and directed to neither seek nor accept medical care other than that provided by the National Health Service. You are not permitted to leave the country.
Thank you for writing.
-Theresa May
“She said: ‘Orkambi is a pioneering drug from America but it’s not currently provided by the NHS except in rare cases on compassionate grounds.”
Compassion? Very sweet girls. Good luck with that.
Keywords added.
Government-run health care (not just insurance) means you are at the mercy of bureaucrats who have life and death power over you. Of course, the ruling elite don’t have to subject themselves to that indignity.
Those girls are not valuable to the government thus the government medical system will not provide for them. That is the nature of government run medicine. Everything is calculated on cost/benefit considerations as perceived by the government.There is always an alternative channel, of course, and that is the corruption that must and does attend upon any non market system. Non affluent people are double hindered in a government system. Their disabling maladies are not cost effectively treatable and they have not the necessary funds for bribes.
BEG, peasant worm.
Death panels.
“Dear Imogen,
“Sorry, dear, but in Socialist systems sometimes individuals must make Great Sacrifices for the Greater Good.
“Be thankful you and your sister are contributing to the Good Of All
“Sincerely,
“Comrade May.”
A more apt question is why the US Government allows a pharmaceutical company to charge $140,000 per patient a year for a medication.
Until we fix that, we will continue to see this sort of thing - and not just in Europe.
I’m sorry, little girl. The money needed to buy your meds was spent on 96 year old Price Philip’s hip replacement.
Well, the problem is that Theresa May is only giving out or withholding expensive treatments in a ministerial sense.
It’s the ratepayers and taxpayers of the UK who will give this kid Orkambi, or not, at $259 000/year.
The way Parliament decided to deal with questions like this in 1948 was to set an annual budget for hospital, physician, nursing, and medication services, and to stick to it. There is, of course, a free market in such services, but it’s cash on the barrelhead and the taxpayers do not pick up part of the tab.
We have chosen a different path, starting in 1965. Here, the share of individuals for whom the taxpayers cover some or all of these services is meant to increase, slowly, year by year. This is true whether or not you have “insurance”, because suppliers (hospitals and drug companies) charges for what they do include paying the cost of people who do not/will not pay.
So, in the UK you have Alfie Evans. In the US, you have $20 trillion in public debt, constant money printing and borrowing, and increasing intimidation of doctors to deliver “quality” (conforming to what the government wants) medicine.
The great virtue of our system is that there’s no one for this kid to write a letter to.
Sorry sweetheart, this is modern Britain, an extension of Nazi Germany. My recommendation is your family get out of Britain as soon as you can. Otherwise you too will come face to face with Dr Joseph Mengele’s students.
ML/NJ
It’s best not to call attention to yourself while in a British hospital. One word - Alfie.
Theresa May: “Forget it kid, we’re saving the money to have Prince Phillip’s other hip replaced.”