Posted on 02/11/2010 10:38:19 PM PST by Joya
CURRENTLY via FReepmail from LibertyRocks 02/11/2010, late Thursday
It was a rough day. We are right now at Children’s Hospital, we came in this afternoon at 2:30 and by 5:00 she was admitted as a patient.
We are in our own private room in the oncology ward - not because she is sick, or because they are thinking it’s definitely cancer (still on the table though), it’s because there are so many kids sick with the flu and H1N1 in the other part of the Peds wing. It’s nice because they are very private rooms, and very comfortable and “homey”.
= = = BACKGROUND via FReepmail from LibertyRocks 02/07/2010 [Superbowl Sunday]
Dear FRiends,
I took my daughter Amanda (13 yo) to the doctor last night [Feb. 6]. She had been complaining of a sore calf for the last 2 weeks. I (we) assumed it was a pulled muscle, and told her to take it easy - she was still walking around and wasn’t limping, but we didn’t notice she was walking on her tiptoes on that leg (long pants...). Yesterday, she came to me and said, “Mom it’s starting to hurt REALLY bad, and there’s a lump....” Turns out there was a lump there, and it’s been getting bigger over the last week or so (at this point it’s slightly oval and at least 2 in. in diameter!). At the doctor’s office we were able to get her in to get an ultrasound before the techs left for the weekend. I saw the ultrasound, but don’t know what I was really looking at - it seemed the mass was pushing out in between her calf muscles so its origin was deep - like next to the bone itself. After the ultrasound my daughter got nervous and confessed there is a lump on her hip that’s been there for some time (a few months???) - it’s much smaller, but it’s there.
[WHY don’t children tell their parents these things? I can’t tell you how frustrating this is now.]
Anyway, the doctor ruled out infection, and a blood clot, and they mostly ruled out a pulled / torn muscle (it would hurt WORSE on her toes if it were the muscle), but they can’t give us a diagnosis at this point at all. They are scheduling her for an MRI (of her leg & hip) first thing [February 8], we need to schedule an appointment with our reg. doctor ASAP for a referral to an Orthopedic Surgeon. If the MRI doesn’t give us more of an answer she will need a biopsy.
Please just pray for Jesus to heal my baby!
We’ve ruled out the “easy” stuff, and there is no history of trauma to the area either! This leaves a few VERY scary diseases - two that are cancers that primarily affect children her age. Combine that with the fact that her doctor’s are flying “half-blind” with only familial medical history of her father (I’m adopted), and it necessitates they treat this as if it’s a cancerous growth until they rule that out.
My daughter is normally a nervous person (like her mom), so please also pray for her to have strength, and not to worry. I’m trying VERY hard to be brave and strong for her, I’m praying with every other breath at this point.
Thanks to everyone for their prayers over our family. I know so many others are going through their own problems. Please know, you all remain in my thoughts and daily prayers.
God Bless all of you, LR
I agree. It may be hard to make though... Although still $800.00 — where do they have to go to get the ingredients, ya know???
Anyway, I do know that the pill form she is taking for the meanwhile has several different parts all made in different parts of the world... The little blue balls inside the capsule are only made in Belgium, and then there is another “barrier” of some sort made somewhere else in Europe, and the final part (I’m guessing the outer capsule) is made here in the US. Maybe that accounts for the cost, because these are still brand-name prescriptions. I guess a generic JUST came out for the liquid, so that might be part of the problem, too as the doctor wants her taking the brand-name. We don’t want to risk any problems.
Oh, I wrote an update at #193, and didn’t have time to ping you Dolly... Unless you saw on FB where I wrote earlier tonight. I should already be in bed, but I want to give Manda one more dose of pain medicine to keep it in her bloodstream and keep the pain at bay, before I turn in... I’m still exhausted! But, I don’t mind doing it, as you can understand I’m sure...
Thanks again for your prayers and concern. :)
I’m glad you’re able to be a home for a bit, and you know you’re always in my prayers! I’m glad to be able to do that for you. :)
Thanks so much for the book suggestion! It sounds PERFECT! I’ll be sure to find it in a store, or through our library system (they are awesome with getting books sent from across the state even). {{{HUGS}}}
Such good news to read. It sounds like everything is moving forward nicely. Excellent. Hugs to you both and prayers continue.
Thank you so much! (New update at #193 tonight/this morning).
I’m not too worried about the medication as I talked with her Infectious Disease specialist today, and he said his office works with them all the time, and they “even know which form they need!” LOL I also know what you mean by the pharmaceutical companies helping those who can’t pay — the liberals never mention that, do they??? Imagine that a company with it’s OWN program for people who can’t afford things — no government involvement necessary! :) LOL I’m glad you’re able to get the medication you need, too!
Speaking of passing along the thanks, Manda and I talked earlier tonight about her doing drawings for everyone from the doctors, and nurses, to the ladies that help make sure kids have as much fun as possible while they’re in the hospital (it’s called the “Child Life” program). I will send her drawings/art along with thank you cards of my own! :)
There was a ton of art drawn by patients and others lining the hundreds of hallways in the hospital so she thought it might be neat to draw one for the Pediatrics Unit, too — one that matched the “decor”, or something fun! We could frame it and send it for them to put up somewhere.
Thanks so much for the prayers and support! We all appreciate it so much!
PRAYER REQ UPDATE ABOVE AT POST 193. and a new Req below for a different FREEPER.
Thanks for the update. Praise God for progress.
Prayers & hugs.
Blessings,
##################
Another FREEPER Bro (U.D.) amongst my ping lists has a couple of adult sons in serious different kinds of troubles:
Son DJ recently divorced from a literally very crazy wife with 2 boys under 5 has been from one new literally not so stable to not so sane woman after another—the last of which just left his house in the last 72 hrs, after 2 weeks, IIRC . . . after more silliness. He really needs to get right with God etc.
He desperately needs to quit flailing about for affirmation, connectedness and companionship and focus on God, his sons, his job and his own psychology and emotional stability WELL BEFORE any new relationships! Sheesh!
Mummy could stand to avoid bailing him out quite so reflexively, as well.
He’s also not that long ago recovered from gastric bypass. My own sense is that he’s really entering very hazardous territory in terms of getting his life together with God, or not. He does not have endless chances, imho.
It is almost like he relentlessly snatches defeat from the jaws of victory. He’s an RN and can do a good job at a good income but even that has been somewhat at risk on occasion because of all his flakey choices and behaviors.
Son DD just got hit on the head by heavy pots was getting down off the top of the frige. Now has slurred speech etc. and is scheduled for a CAT scan today.
ANYWAY—IF ANYONE HAS ANY PARTICULAR DISCERNMENT OR WORD FROM THE LORD ON THESE TWO SONS, PLEASE LET ME KNOW. It’s been a long hard haul and is hardly over.
Cranberry pills might be in order, stronger than juices...Walgreens & Krogers & Rite Aide usually have them and you can get them 2 for the price of 1. I'd still take a probiotic along with the anti-fungal...if it kills fungus which yeast is, it will kill the good bacteria in the gut too. Probiotics are good for the gut regardless if you are not even on anti-fungals or antibiotics.
I’m so glad that things are going as well as can be expected for Amanda. Sounds like a nasty infection, so it will take time. I love her attitude about using the down time to read and learn! Reading is an excellent way to pass the time. A good book can seemingly transport you to another time and place where you can enjoy yourself despite not feeling up to par.
Glad she liked the picture of the flowers. : ) Flowers are one of the things that remind me how awesome and loving is our God that he would surround us with such beauty.
I’m continuing to pray for her, and for you all, that each day will bring more improvement toward restoration of her health. God bless.
I join in prayer for this man and his sons!
Prayers up for Mandy, your family and for all her healthcare providers.
Prayers for DD and DJ and their families.
You are very welcome, I know what you are going through.
All,
Thanks tons for your prayers. Greatly aprpeciated.
Bump!
Urgent & heart-felt prayers for the family so that everything will turn around for them, too. Especially as far as the little girl is concerned! How scary! I’m sorta focused on Amanda, but I’ll let you know if I have any feelings concerning them when praying at all, of course. :)
Thank you so much for the help in passing along word to everyone!
God bless,
LR
THANKS FOR THE PRAYERS.
LUB
No problem at all... I really feel for all of them.
Just FYI: I just put up an update I wrote earlier this afternoon at #216. I need to go through my ping list and remove some duplicate names, and add a few from FReepmail before I ping everyone again, but Mandy is doing really well. Thought you might like to see what I wrote in case you missed it when you just posted! LOL :)
Thanks for the information, Gail! I will definitely look into those! :)
Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.
