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Keyword: als

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  • FDA Approves First New Drug For ALS Treatment In 22 Years

    05/06/2017 4:34:07 PM PDT · by Extremely Extreme Extremist · 13 replies
    CBS PHILLY 3 ^ | 06 MAY 2017 | CNN
    PHILADELPHIA (CNN) — The US Food and Drug Administration has approved the first new drug for the treatment of amyotrophic lateral sclerosis, or ALS, in more than two decades. The FDA announced Friday that Radicava, also known as edaravone, has been approved for use in the United States. The only other drug specifically for the treatment of ALS is riluzole, which was approved for use in the United States in 1995. Tests conducted in Japan found that ALS sufferers who received edaravone experienced a smaller decline in their level of daily functioning compared to those who received a placebo.
  • California woman holds party before ending her life

    08/11/2016 1:56:20 PM PDT · by rey · 94 replies
    Press Democrat ^ | 11 Aug 2016
    In early July, Betsy Davis emailed her closest friends and relatives to invite them to a two-day party, telling them: "These circumstances are unlike any party you have attended before, requiring emotional stamina, centeredness and openness." And just one rule: No crying in front of her. The 41-year-old artist with ALS, or Lou Gehrig's disease, held the gathering to say farewell before becoming one of the first Californians to take a take a lethal dose of drugs under the state's new doctor-assisted suicide law for the terminally ill.
  • Kevin Turner, 1969-2016: Former Alabama, NFL fullback known for toughness, versatility

    03/24/2016 2:27:10 PM PDT · by Kid Shelleen · 5 replies
    AL.com (Alabama) ^ | 03/24/2016 | Creg Stephenson
    Former Alabama and NFL fullback Kevin Turner, who died Thursday after a long battle with the neurodegenerative disease ALS, is perhaps best remembered his toughness and versatility as a player and later his perseverance in fighting a deadly illness. Turner, who was 46, played fullback at Alabama from 1988-91. He then spent eight seasons in the NFL with the New England Patriots and Philadelphia Eagles, retiring after the 1999 season.
  • Scientists Connect Brain to a Basic Tablet—Paralyzed Patient Googles With Ease

    10/25/2015 11:38:03 PM PDT · by wastedyears · 34 replies
    singularityhub.com ^ | 10/25/2015 | Shelly Fan
    Scientists Connect Brain to a Basic Tablet—Paralyzed Patient Googles With Ease
  • Diver Dave was called home Sunday morning.

    08/16/2015 10:00:00 PM PDT · by JustAmy · 253 replies
    8-16-2015 | JustAmy. MamaBear
    Graphic by MamaBear After fighting ALS for several months, on Sunday morning Diver Dave was called home to Jesus' loving arms. According to his family, he is having a great reunion with his parents, his oldest sister, his parents-in-law and many others including many FReepers. As we recall what a Patriot Diver Dave was, it seems appropriate that he joined FreeRepublic July 4, 1998. Dave loved this country and our troops. Many times, he drove 2 hours each way to join the Fresno Freepers in support of our troops. Dave had a very strong faith that was an inspiration...
  • How a Former NFL Star with ALS Finds Small Victories Every Day

    05/25/2015 6:12:11 PM PDT · by FlJoePa · 4 replies
    yahoo ^ | 5-20-15 | Savita Iyer
    <p>Every few days, Chie Smith, a former cheerleader for the Oakland Raiders, chops, dices, and blends together a selection of fresh, raw vegetables, cooked wild salmon, and quinoa in her Richardson, Texas, home.</p> <p>The smooth puree that she portions out into equal servings are for her husband, former NFL player Steve Smith, 50, who was diagnosed with amyotrophic lateral sclerosis (ALS) in 2002 and has been using a feeding tube since 2006.</p>
  • Comrades Get to Torture Ransom

    12/27/2014 3:36:07 AM PST · by Kaslin · 2 replies
    Townhall.com ^ | December 26, 2014 | John Ransom
    I have selfish reasons to do the Ice Bucket Challenge this year.To get the basement dwellers up to speed: The Ice Bucket Challenge is where a person has an ice bucket with water dumped over his head to benefit the ALS Association. In my case, I will make a donation over $100 to ALSA, and ask others I challenge to make any donation whatever or get the bucket dumped oj them… or better yet, take the bucket, make a donation and challenge others to do the same.I also give a chance to comrades to torture me with this modified version...
  • Prayers are requested for Diver Dave

    09/29/2014 1:30:52 PM PDT · by JustAmy · 171 replies
    9-29-2014 | JustAmy
  • The Abortion Bucket Challenge

    09/12/2014 7:09:37 AM PDT · by Kaslin · 8 replies
    Townhall.com ^ | September 12, 2014 | Mike Adams
    Dear Megan (Marzec): I am writing to express my extreme disappointment with your recent actions as Ohio University’s (OU) student senate president. In my constitutionally protected opinion, you have exhibited some serious anti-Semitic tendencies. You have also come across as an unprincipled opportunist. Of course, I am referring to the manner in which you responded to the charge from OU President Roderick McDavis to participate in the ALS Ice Bucket Challenge. Instead of taking it seriously, you decided to douse yourself in fake blood in order to make a grossly ill-timed political statement. According to my friends at Campus Reform,...
  • Megapastors take Ice Bucket Challenge for ALS—but where did the money go?

    09/09/2014 8:43:29 PM PDT · by Morgana · 4 replies
    Life Site ^ | Dustin Siggins
    Last week, several prominent megapastors took the ALS Association's Ice Bucket Challenge. A LifeSiteNews inquiry into whether the pastors donated to the ALS Association or another organization found that the pastors were, for the most part, unwilling to publicize where their monetary support went. In challenge videos reported by the Christian Post, Perry Noble, pastor of NewSpring Church; Jentezen Franklin, pastor of Free Chapel; Life Without Limbs ministry leader Nick Vujicic; Dr. Ed Young, pastor of Second Baptist Church Houston; and TD Jakes, pastor of The Potter's House, all promoted ALS research donations. However, only Young's spokesperson provided donation details...
  • The dark side of the Ice Bucket Challenge

    09/07/2014 7:19:11 AM PDT · by Objective Scrutator · 31 replies
    World Net Daily ^ | September 2, 2014 | Selena Owens
    [...] Satanic ritual? Yes. Rituals abound in “Christian” America. Whenever spectators watch singers like Beyonce, JayZ, Rihanna, Lady Gaga and especially Nicki Minaj, they are indoctrinated and involved with blatantly satanic rituals that stem from the deep abyss of the occult. Some of these very same artists have taken the ALS IBC. Gaga doesn’t utter a word as she baptizes herself, arrayed in a sexy black leotard, sporting black lips, perched in an ornate black chair. Gaga doesn’t use a bucket; she instead uses a large silver bowl associated with pagan worship. Do you think she would take the IBC...
  • Catholic Church Warns Pro-Lifers About Ice Bucket Challenge Donations

    08/25/2014 5:46:38 PM PDT · by Citizen Zed · 9 replies
    Life News ^ | 8-25-2014 | Steven Ertelt
    Unfortunately, as LifeNews has documented, there is a chance your donation to The ALS Association could be used to support embryonic stem cell research. ALSA has confirmed it supports research involving the destruction of unborn human life to find cures for the disease. In an email to Religion News Service, Carrie Munk, a spokeswoman for the ALS Association, said that the organization primarily funds adult stem cell research. “Currently, The Association is funding one study using embryonic stem cells (ESC), and the stem cell line was established many years ago under ethical guidelines set by the National Institute of Neurological Disorders...
  • ALS Ice Bucket Challenge: Do You Know What You Are Supporting?

    The ALS Ice Bucket Challenge to raise money for the ALS Association is sweeping the nation, and going viral in social media. However, do you know what you are supporting if you contribute funds to the ALS Association? The ALS Association describes their “mission”: Established in 1985, The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front.  By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life...
  • Sarah Palin - ALS Ice Bucket Challenge (Politician)

    08/23/2014 3:48:57 PM PDT · by GrandJediMasterYoda · 35 replies
    youtube ^ | 8/23/14 | Sarah Palin
    Sarah Palin - ALS Ice Bucket Challenge (Politician) Sarah Palin - ALS Ice Bucket Challenge. I accept Wasilla Arctic Cat’s #icebucketchallenge to #strikeoutALS and will donate to the Pete Frates #3 Fund. Watch my video to see whom I challenge. Hat tip to actor Patrick Stewart for reminding everyone with his video that the donation is the most important part of the #icebucketchallenge, not the frivolous water-tossing theatrics that those of us who are more thoughtfully serious choose to forgo. Find out more about #ALS and learn the story behind the #icebucketchallenge here: http://is.gd/EchG4H and here: http://petefrates.com/ Next up, it's...
  • Catholic school superintendent takes part in ALS ice bucket challenge

    08/22/2014 1:33:28 PM PDT · by Welchie25 · 9 replies
    Catholic Review ^ | 8/22/14 | John Stegeman
    Showing his support for those suffering from Lou Gehrig’s disease, the superintendent of Catholic schools for the Cincinnati Archdiocese took part in the ice bucket challenge Aug. 21. Superintendent Jim Rigg was joined by Tom Otten, principal of Elder Catholic High School, on the school’s campus. The challenge has taken the nation by storm to raise money in support of research into the disease, which is formally known as amyotrophic lateral sclerosis, or ALS. ALS is a progressive neurodegenerative disease for which there is no cure and no proven treatments. In the challenge, people are asked to share videos through...
  • Pamela Anderson, Carey Hart Slam ALS Ice Bucket Challenge in Online Rants

    08/21/2014 2:46:52 PM PDT · by EveningStar · 31 replies
    Us Weekly ^ | August 21, 2014 | Javy Rodriguez
    Cool it! While Hollywood has accepted the ALS Ice Bucket Challenge in droves, uploading often-creative, LOL videos and nominating each other, Pamela Anderson and Carey Hart took to their social media pages to criticize the viral campaign, meant to raise funds for Lou Gehrig's disease research. On Wednesday Aug. 20, Anderson, a longtime supporter of animal rights, posted a Facebook message criticizing ALS researchers for their research practices... The next morning, on Thursday, Aug. 21, Hart similarly railed against those who have hopped on the ice bucket bandwagon...
  • Nancy Pelosi Takes the ALS Ice Bucket Challenge

    08/20/2014 3:06:46 PM PDT · by Morgana · 31 replies
    If you haven’t heard, people are pouring buckets of ice water over their heads to raise money and awareness for amyotrophic lateral sclerosis (ALS), and Nancy Pelosi has accepted the challenge! Pictures on link!!!!!!
  • Newly identified bone marrow stem cells reveal markers for ALS

    07/09/2013 3:50:18 PM PDT · by neverdem · 8 replies
    Medical Xpress ^ | July 9, 2013 | NA
    Amyotrophic Lateral Sclerosis (ALS) is a devastating motor neuron disease that rapidly atrophies the muscles, leading to complete paralysis. Despite its high profile—established when it afflicted the New York Yankees' Lou Gehrig—ALS remains a disease that scientists are unable to predict, prevent, or cure. Although several genetic ALS mutations have been identified, they only apply to a small number of cases. The ongoing challenge is to identify the mechanisms behind the non-genetic form of the disease and draw useful comparisons with the genetic forms.Now, using samples of stem cells derived from the bone marrow of non-genetic ALS patients, Prof. Miguel...
  • Former Allman Brothers guitarist Dan Toler dies

    02/25/2013 12:05:25 PM PST · by EveningStar · 17 replies
    Sarasota Herald-Tribune ^ | February 25, 2013 | Wade Tatangelo
    A nationally acclaimed guitar great and cherished member of the Sarasota-Bradenton music scene has passed. "Dangerous" Dan Toler – former guitarist for the Allman Brothers Band, Gregg Allman Band and Dickey Betts’ Great Southern group – died today at age 65, according to Gregg Allman Band mate and close friend Chaz Trippy. Toler was battling amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, and living in the Whitfield area of Manatee County.
  • Prayers for my Brother who has been told he has ALS

    05/05/2012 3:46:52 PM PDT · by calex59 · 115 replies
    Me | 5/5/2012 | Me
    My brother has just been diagnosed with ALS(Lou Gherig's disease). I would like to request Prayers for him.