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Prayer Needed
04.20.04
Posted on 03/16/2004 8:30:42 PM PST by mlmr
My middle daughter who is 11 starts testing for Cushing's Syndrome on Friday. She is so young and it is such a big disease. I am kicking myself for not recognizing it earlier. I thought she had some sort of refractory issue with TypeII diabetes. I had been thinking of bringing her to a pediatric endocrinologist for the past year. But her sysmptoms were too vague. They have blossemed.
I need Freeper prayers. There are few more even tempered and pleasant children than my middler. Always eager to help, generous, and kind, she is the daughter I always have hoped would take me in when I am in my dotage. I am so frightened for her.
One thing that I need to know, I keep on reading how people find the top medico in a particualar speciality on the Internet. I have been searching all day for top Cushing Syndrome people. How are they found? Through research papers?
TOPICS: Miscellaneous; Unclassified; Your Opinion/Questions
KEYWORDS: cushings; daughter; loveofmylife; prayerlist; prayers
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To: mlmr
May God send you a miracle!!!
Joining in prayer!
61
posted on
03/17/2004 4:54:54 AM PST
by
netmilsmom
(Jonathansmommie's daughter was born 3-11-04, God Bless her!)
To: mlmr
Prayers.
62
posted on
03/17/2004 5:24:04 AM PST
by
TXBSAFH
(KILL-9 needs no justification.)
To: mlmr
Prayers sent.
63
posted on
03/17/2004 5:31:20 AM PST
by
Auntbee
To: mlmr
Many prayers--
If I may suggest, try to go "local" at least at the beginning. It will be less stressful. There may well be an internist with an interest and background in Cushings--inquire.
64
posted on
03/17/2004 5:51:37 AM PST
by
Mamzelle
To: mlmr; kimmie7
Prayers sent. May God continue to keep both of you and your little ones in His providential care that the desires of your heart will be fulfilled and all will be well.
65
posted on
03/17/2004 5:52:50 AM PST
by
LucyJo
To: mlmr; Budge
NINDS Cushing's Syndrome Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/cushings_doc.htm Try to find an email list or chat room with other caregiver's or even Cushing's Syndrome survivors themselves. This is _the_ best place to learn of the _best_ facilities and the _best_ doctors for treating a particular disease. Go to those who have already walked the road you are currently walking. Learn from them. It took some time for me to learn this, but it is what I did when I was diagnosed with a brain tumor back in August 2001, and it was tremendously helpful. Now, in addition to my local doctors, I'm also being treated by The Brain Tumor Center at Duke University (a short five hour drive from my house).
Prayers of love, faith, strength and hope for you, your daughter and your entire family. Joe (MCM)
Thanks for the ping, Budge.
66
posted on
03/17/2004 5:54:11 AM PST
by
MrConfettiMan
(Married White Male; 38; Conservative; Likes Reading, Bike Riding; Dislikes Liberals; Seeks Tagline)
To: mlmr
One more thing, I'm a big advocate of getting multiple opinions before deciding on a particular treatment. Of course, your personality may lead you in a different direction but after I was diagnosed (and quickly thereafter had surgery) I went to three different institutions in addition to my local doctors for additional opinions on what course of action to take next.
Knowledge is power. Just my two cents.
http://www.mcmprod.com/jj
67
posted on
03/17/2004 5:59:48 AM PST
by
MrConfettiMan
(Married White Male; 38; Conservative; Likes Reading, Bike Riding; Dislikes Liberals; Seeks Tagline)
To: mlmr
Fervent prayers for your daughter, and for you. Lord, please give strength and healing.
May we ask your daughter's first name?
68
posted on
03/17/2004 6:05:10 AM PST
by
r9etb
To: mlmr
Prayers on the way for you daughter, you and your family.
69
posted on
03/17/2004 6:07:25 AM PST
by
WV Mountain Mama
(Card carrying member of the Republican ATtack Squad, RATS, our only weapon: TRUTH.)
To: mlmr
Prayers for your daughter. A very close friend of ours has Cushings and is doing excellently well. About to get married and leads a perfectly normal life.
70
posted on
03/17/2004 6:09:48 AM PST
by
OldFriend
(Always understand, even if you remain among the few)
To: OldFriend
Prayers for you and yours ... In Jesus' Name.
71
posted on
03/17/2004 6:16:28 AM PST
by
Jn316
To: Budge
prayer bump
72
posted on
03/17/2004 6:45:41 AM PST
by
Tribune7
(Vote Toomey April 27)
Comment #73 Removed by Moderator
To: OldFriend
Did she have the surgery?
74
posted on
03/17/2004 7:13:19 AM PST
by
mlmr
(Now that same sex marriage is legal, who will John Kerry marry next? Bill Gates? Warren Buffet?)
To: BlessedBeGod
Except for the hair, this angel looks exactly like my angel who has waist length curly hair.
75
posted on
03/17/2004 7:16:15 AM PST
by
mlmr
(Now that same sex marriage is legal, who will John Kerry marry next? Bill Gates? Warren Buffet?)
To: mlmr; Brad's Gramma
I thought I'd do a google search (www.google.com)using Cusing Syndrome Medical Specialists as key words and up came a page full of information. The 3rd on the list referred me to Dr. Phillip R. Orlander, MD, Professor of endocremology at the University of Texas Medical School Houston. I would imagine any Teaching Medical School can refer you to a Specialist in that field. I would also imagine that Dr. Orlander and other doctors who specialize in your local area are known to each other. If not they certainly would know how to locate a specialist near you.
From what I read it appears the disease is treatable and in some cases curable. God Bless!
To: mlmr
On the way.
77
posted on
03/17/2004 7:19:10 AM PST
by
AppyPappy
(If You're Not A Part Of The Solution, There's Good Money To Be Made In Prolonging The Problem.)
To: mlmr
prayer bump!
To: mlmr; 68-69TonkinGulfYachtClub; Jen; Beach_Babe; bentfeather; blackie; Brad's Gramma; ...
Prayer ping! - apologies for multiple pings.
Lord be with this child and her family during this stressful time. Give them strength, and guide the doctors in their work. Amen.
Freep mail me if you would like to be added/removed from my prayer list
79
posted on
03/17/2004 7:31:41 AM PST
by
Johnny Gage
(If you're in a vehicle going the speed of light, what happens when you turn on the headlights?)
To: mlmr
Prayers for your child.
80
posted on
03/17/2004 7:36:30 AM PST
by
Soaring Feather
(~ I do poetry and party among the stars ~)
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