Posted on 02/11/2010 10:38:19 PM PST by Joya
CURRENTLY via FReepmail from LibertyRocks 02/11/2010, late Thursday
It was a rough day. We are right now at Children’s Hospital, we came in this afternoon at 2:30 and by 5:00 she was admitted as a patient.
We are in our own private room in the oncology ward - not because she is sick, or because they are thinking it’s definitely cancer (still on the table though), it’s because there are so many kids sick with the flu and H1N1 in the other part of the Peds wing. It’s nice because they are very private rooms, and very comfortable and “homey”.
= = = BACKGROUND via FReepmail from LibertyRocks 02/07/2010 [Superbowl Sunday]
Dear FRiends,
I took my daughter Amanda (13 yo) to the doctor last night [Feb. 6]. She had been complaining of a sore calf for the last 2 weeks. I (we) assumed it was a pulled muscle, and told her to take it easy - she was still walking around and wasn’t limping, but we didn’t notice she was walking on her tiptoes on that leg (long pants...). Yesterday, she came to me and said, “Mom it’s starting to hurt REALLY bad, and there’s a lump....” Turns out there was a lump there, and it’s been getting bigger over the last week or so (at this point it’s slightly oval and at least 2 in. in diameter!). At the doctor’s office we were able to get her in to get an ultrasound before the techs left for the weekend. I saw the ultrasound, but don’t know what I was really looking at - it seemed the mass was pushing out in between her calf muscles so its origin was deep - like next to the bone itself. After the ultrasound my daughter got nervous and confessed there is a lump on her hip that’s been there for some time (a few months???) - it’s much smaller, but it’s there.
[WHY don’t children tell their parents these things? I can’t tell you how frustrating this is now.]
Anyway, the doctor ruled out infection, and a blood clot, and they mostly ruled out a pulled / torn muscle (it would hurt WORSE on her toes if it were the muscle), but they can’t give us a diagnosis at this point at all. They are scheduling her for an MRI (of her leg & hip) first thing [February 8], we need to schedule an appointment with our reg. doctor ASAP for a referral to an Orthopedic Surgeon. If the MRI doesn’t give us more of an answer she will need a biopsy.
Please just pray for Jesus to heal my baby!
We’ve ruled out the “easy” stuff, and there is no history of trauma to the area either! This leaves a few VERY scary diseases - two that are cancers that primarily affect children her age. Combine that with the fact that her doctor’s are flying “half-blind” with only familial medical history of her father (I’m adopted), and it necessitates they treat this as if it’s a cancerous growth until they rule that out.
My daughter is normally a nervous person (like her mom), so please also pray for her to have strength, and not to worry. I’m trying VERY hard to be brave and strong for her, I’m praying with every other breath at this point.
Thanks to everyone for their prayers over our family. I know so many others are going through their own problems. Please know, you all remain in my thoughts and daily prayers.
God Bless all of you, LR
God bless the good doctors and nurses for all their years of hard work.
Praise, and continued prayer for full recovery
Thank you for the good news.
My prayers will be for you and your family and the continued healing of Amanda.
Please note: Update from yesterday at #154 - forgot to ping everyone - sorry!
[Also apologies for any duplicate pings, a FRiend put the list together, and although I see a couple dupes I can’t go through it right now to remove the names - there are a LOT! I will do so before I update again tomorrow... Sorry!]
UPDATE: Prayers needed for Insurance Problems re: Medication Needed & healing for Amanda still, of course. Also requesting prayer for a cousin of my husband’s who just lost their 13-year-old boy to leukemia back on Jan. 25th (we just found out...).
The pharmacy was able to special order Amanda’s medicine and it will be here tomorrow (Monday) at 10am. The price is a bit of a problem though... Please pray that her insurance will understand she is not “wanting” the liquid vs. the pills, but that she NEEDS the liquid form due to the severity of her infection and the efficacy of the liquid.
The hospital & pharmacy are working with our insurance - otherwise it’s $800.00 for her first script. That might only be for ONE WEEK’s WORTH!
The hospital, and doctors have basically assured us that no matter what - we will NOT need to pay that amount - they will find a program to help us, if her insurance doesn’t come through for us... Please pray this is true. She will need this medication for I would guess at least a few weeks before she can take the pill form. (She is taking the pills tonight to keep it in her system until we get the liquid tomorrow).
Mandy was also having a very hard time today with pain, and nausea/vomiting, so prayers for her comfort are requested as well. She IS doing better tonight. I’m praying she isn’t sensitive to the liquid as it was after her liquid medication, but she had 4 doses before the first time she got sick, so we’ll cross our fingers...
One more prayer request, please... We found out that Amanda’s second cousin passed away on Jan. 25th - he was being treated at St. Joseph’s for Leukemia (perhaps this was part of the reason her doctors (the same as his) were so worried about her, and had her in the oncology ward - but were not able to tell us that because of privacy issues of course, and not to scare us unnecessarily?). Please pray for the family of Matthew.
Thank you all so very much for the continued prayers and support. I will never be able to express how much everyone’s support means to me, and our whole family. Prayers for God’s blessings for all of you...
Sorry I didn’t write you personally sooner, Granny! {{{HUGS}}} I just posted another update, at #164. :)
Much love to you, and thank you for the prayers.
Prayers for both Amanda and Matthew’s family.
Blessed relief. The Lord is our Shepherd; we shall fear no evil.
Prayers.
Thanks for the update.
Excellent news that Amanda is home! You have my prayers regarding the insurance and medicine expense. Also that her pain is relieved and she recover swiftly.
Prayers too for Matthew’s family and loved ones.
Continued prayers. May the young man rest in peace.
Praying as you requested. Thanks for the updates again.
For the family of Matthew - I came across this from J. Vernon Magee who lost a little child. His program just mentioned this booklet which can be downloaded for free - called “Death of a Little Child”.
Perhaps you can download this for them and print it out for them or give them the link to do it themselves?
Blessings to you all...
I join in prayer for Matthew’s loved ones as they deal with his homegoing. And prayers continue for Amanda...
BTTT
Notre père, qui êtes aux cieux!
Que votre nom soit sanctificié. Que votre règne vienne.
Que votre volonté soit faite, sur la terre comme au ciel.
Donnez-nous aujourd'hui notre poindre ce jour.
Pardonnez-nous nos offenses, comme nous pardonnons aussi a ceux, qui nous ont offensés,
et ne nous soumetez pas à la tentation, mais délivrez-nous du mal.
Car c'est à toi qu'appartiènne, le régne, la puissance et la gloire, pour les siècles des siècles.
Amen.
Je vous salue, Marie, pleine de grâces,
le Seigneur est avec vous, vous êtes bénie entre toutes les femmes,
et Jésus le fruit de vos entrailles est béni.
Sainte Marie, Mère de Dieu, priez pour nous pauvres pécheurs,
maintenant, et à l'heure de notre mort. Ainsi-soit-il.
Garde la Foi, mes amis! Nous nous sommes les sauveurs de la République! Maintenant et Toujours!
(Keep the Faith, my friends! We are the saviors of the Republic! Now and Forever!)
LonePalm, le Républicain du verre cassé (The Broken Glass Republican)
Site has info on the olive leaf capsules which have anti-fungal properties.
Continued prayer for Amanda.
Thx.
for the olive leaf ping.
Prayers continue.
Prayer warrior ping. Update in post 164
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